دورية أكاديمية
أعرض في EDS

Correlates of perceived shared decision making with parents of children with special healthcare needs: Findings from the PART-CHILD study.

التفاصيل البيبلوغرافية
العنوان: Correlates of perceived shared decision making with parents of children with special healthcare needs: Findings from the PART-CHILD study.
المؤلفون: Görig T; Department of Medical Informatics, Biometry and Epidemiology, Professorship of Epidemiology and Public Health, Friedrich-Alexander-Universität Erlangen-Nürnberg (FAU), Erlangen, Germany. Electronic address: tatiana.goerig@fau.de., Eichinger M; Center for Preventive Medicine and Digital Health, Medical Faculty Mannheim, Heidelberg University, Mannheim, Germany; Division of Pediatric Epidemiology, Institute of Medical Biostatistics, Epidemiology, and Informatics, University Medical Center of the Johannes Gutenberg-University Mainz, Mainz, Germany., Georg S; Center for Preventive Medicine and Digital Health, Medical Faculty Mannheim, Heidelberg University, Mannheim, Germany., Hoffmann D; Division of Pediatric Epidemiology, Institute of Medical Biostatistics, Epidemiology, and Informatics, University Medical Center of the Johannes Gutenberg-University Mainz, Mainz, Germany., Philippi H; Social Pediatric Center Frankfurt, Frankfurt, Germany., König J; Division of Pediatric Epidemiology, Institute of Medical Biostatistics, Epidemiology, and Informatics, University Medical Center of the Johannes Gutenberg-University Mainz, Mainz, Germany., Urschitz MS; Division of Pediatric Epidemiology, Institute of Medical Biostatistics, Epidemiology, and Informatics, University Medical Center of the Johannes Gutenberg-University Mainz, Mainz, Germany., De Bock F; Department of General Pediatrics, Neonatology and Pediatric Cardiology, Medical Faculty, University Hospital Düsseldorf, Heinrich-Heine-University Düsseldorf, Düsseldorf, Germany.
المصدر: Patient education and counseling [Patient Educ Couns] 2024 Jul; Vol. 124, pp. 108252. Date of Electronic Publication: 2024 Mar 16.
نوع المنشور: Journal Article; Research Support, Non-U.S. Gov't
اللغة: English
بيانات الدورية: Publisher: Elsevier Country of Publication: Ireland NLM ID: 8406280 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1873-5134 (Electronic) Linking ISSN: 07383991 NLM ISO Abbreviation: Patient Educ Couns Subsets: MEDLINE
أسماء مطبوعة: Publication: Limerick : Elsevier
Original Publication: Princeton, N.J. : Excerpta Medica, c1983-
مواضيع طبية MeSH: Parents*/psychology , Decision Making, Shared* , Disabled Children*, Humans ; Female ; Male ; Child ; Cross-Sectional Studies ; Germany ; Child, Preschool ; Adolescent ; Adult ; Surveys and Questionnaires ; Decision Making ; Perception ; Patient Participation ; Infant ; Professional-Family Relations
مستخلص: Objective: To assess the extent of perceived shared decision making (SDM) with parents of pediatric patients and to examine its association with characteristics of patients, professionals, and healthcare facilities.
Methods: Parents of pediatric patients (n = 4383) were recruited in 15 social pediatric centers in Germany and provided information on perceived SDM (binary CollaboRATE pediatric score: optimal versus suboptimal extent of SDM), child age and sex, type of impairment, appointment, and healthcare professional present at the appointment. Organizational characteristics were assessed in a cross-sectional survey of staff at the study sites.
Results: Overall, 58.4% of parents reported an optimal extent of SDM. The optimal extent of SDM was more likely reported by parents of girls (OR=1.27, p < 0.001) and children with physical (as opposed to cognitive and combined) impairments (OR=1.30, p = 0.006), and after appointments attended by allied health professionals (OR=1.28, p = 0.004). In addition, parents in facilities receiving financing in addition to compensation by statutory health insurance funds were less likely to report an optimal extent of perceived SDM.
Conclusion: While SDM with parents was mostly related to individual characteristics of children and professionals at appointments, organizational characteristics seemed less relevant in our study.
Practice Implications: Staff should be made aware of lower SDM with parents of boys, older children, and those with cognitive impairments, and trained to improve the SDM in these groups.
Competing Interests: Declaration of Competing Interest The authors declare that they have no known competing financial interests or personal relationships that could have appeared to influence the work reported in this paper.
(Copyright © 2024 The Authors. Published by Elsevier B.V. All rights reserved.)
فهرسة مساهمة: Keywords: Children; Outpatient care; Parents; Participation; Pediatrics; Shared decision making; Special healthcare needs
تواريخ الأحداث: Date Created: 20240319 Date Completed: 20240504 Latest Revision: 20240504
رمز التحديث: 20240505
DOI: 10.1016/j.pec.2024.108252
PMID: 38503036
قاعدة البيانات: MEDLINE
الوصف
تدمد:1873-5134
DOI:10.1016/j.pec.2024.108252