التفاصيل البيبلوغرافية
| العنوان: |
Adolescent OCD Patient and Caregiver Perspectives on Identity, Authenticity, and Normalcy in Potential Deep Brain Stimulation Treatment. |
| المؤلفون: |
Smith JN; Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, TX, USA., Dorfman N; Department of Philosophy, University of Washington, Seattle, WA, USA., Hurley M; Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, TX, USA., Cenolli I; Center for Bioethics, Harvard Medical School, Boston, MA, USA., Kostick-Quenet K; Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, TX, USA., Storch EA; Psychiatry & Behavioral Sciences, Baylor College of Medicine, Houston, TX, USA., Lázaro-Muñoz G; Center for Bioethics, Harvard Medical School, Boston, MA, USA., Blumenthal-Barby J; Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, TX, USA. |
| المصدر: |
Cambridge quarterly of healthcare ethics : CQ : the international journal of healthcare ethics committees [Camb Q Healthc Ethics] 2024 Apr 11, pp. 1-14. Date of Electronic Publication: 2024 Apr 11. |
| Publication Model: |
Ahead of Print |
| نوع المنشور: |
Journal Article |
| اللغة: |
English |
| بيانات الدورية: |
Publisher: Cambridge University Press Country of Publication: United States NLM ID: 9208482 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1469-2147 (Electronic) Linking ISSN: 09631801 NLM ISO Abbreviation: Camb Q Healthc Ethics Subsets: MEDLINE |
| أسماء مطبوعة: |
Original Publication: New York, NY : Cambridge University Press, c1992- |
| مستخلص: |
The ongoing debate within neuroethics concerning the degree to which neuromodulation such as deep brain stimulation (DBS) changes the personality, identity, and agency (PIA) of patients has paid relatively little attention to the perspectives of prospective patients. Even less attention has been given to pediatric populations. To understand patients' views about identity changes due to DBS in obsessive-compulsive disorder (OCD), the authors conducted and analyzed semistructured interviews with adolescent patients with OCD and their parents/caregivers. Patients were asked about projected impacts to PIA generally due to DBS. All patient respondents and half of caregivers reported that DBS would impact patient self-identity in significant ways. For example, many patients expressed how DBS could positively impact identity by allowing them to explore their identities free from OCD. Others voiced concerns that DBS-related resolution of OCD might negatively impact patient agency and authenticity. Half of patients expressed that DBS may positively facilitate social access through relieving symptoms, while half indicated that DBS could increase social stigma. These views give insights into how to approach decision-making and informed consent if DBS for OCD becomes available for adolescents. They also offer insights into adolescent experiences of disability identity and "normalcy" in the context of OCD. |
| معلومات مُعتمدة: |
1RF1MH121371-01 United States MH NIMH NIH HHS |
| فهرسة مساهمة: |
Keywords: agency; authenticity; children; deep brain stimulation; identity; normalcy; obsessive-compulsive disorder |
| تواريخ الأحداث: |
Date Created: 20240411 Latest Revision: 20240411 |
| رمز التحديث: |
20240411 |
| DOI: |
10.1017/S0963180124000203 |
| PMID: |
38602092 |
| قاعدة البيانات: |
MEDLINE |
