دورية أكاديمية
أعرض في EDS

The Australian Traumatic Brain Injury Initiative: Review and Recommendations for Outcome Measures for Use With Adults and Children After Moderate-to-Severe Traumatic Brain Injury.

التفاصيل البيبلوغرافية
العنوان: The Australian Traumatic Brain Injury Initiative: Review and Recommendations for Outcome Measures for Use With Adults and Children After Moderate-to-Severe Traumatic Brain Injury.
المؤلفون: Ponsford JL; Monash-Epworth Rehabilitation Research Centre, Epworth Healthcare, Melbourne, Victoria, Australia.; School of Psychological Sciences, Monash University, Melbourne, Victoria, Australia., Hicks AJ; Monash-Epworth Rehabilitation Research Centre, Epworth Healthcare, Melbourne, Victoria, Australia.; School of Psychological Sciences, Monash University, Melbourne, Victoria, Australia., Bagg MK; Curtin Health Innovation Research Institute, Faculty of Health Sciences, Curtin University, Bentley, Western Australia, Australia.; Perron Institute for Neurological and Translational Science, Nedlands, Western Australia, Australia.; Centre for Pain IMPACT, Neuroscience Research Australia, Sydney New South Wales, Australia., Phyland R; Monash-Epworth Rehabilitation Research Centre, Epworth Healthcare, Melbourne, Victoria, Australia.; School of Psychological Sciences, Monash University, Melbourne, Victoria, Australia., Carrier S; Monash-Epworth Rehabilitation Research Centre, Epworth Healthcare, Melbourne, Victoria, Australia.; School of Psychological Sciences, Monash University, Melbourne, Victoria, Australia., James AC; Monash-Epworth Rehabilitation Research Centre, Epworth Healthcare, Melbourne, Victoria, Australia.; School of Psychological Sciences, Monash University, Melbourne, Victoria, Australia., Lannin NA; Department of Neuroscience, Central Clinical School, Monash University, Melbourne, Victoria, Australia.; Alfred Health, Melbourne, Victoria, Australia., Rushworth N; Brain Injury Australia, Sydney, New South Wales, Australia., O'Brien TJ; Department of Neuroscience, Central Clinical School, Monash University, Melbourne, Victoria, Australia.; Alfred Health, Melbourne, Victoria, Australia., Cameron PA; Alfred Health, Melbourne, Victoria, Australia.; School of Public Health and Preventive Medicine, Monash University, Melbourne, Victoria, Australia.; Emergency and Trauma Centre, The Alfred Hospital, Melbourne VIC 3004, Australia., Cooper DJ; Emergency and Trauma Centre, The Alfred Hospital, Melbourne VIC 3004, Australia.; Department of Intensive Care and Hyperbaric Medicine, The Alfred Hospital, Melbourne Victoria, Australia., Hill R; Regina Hill Effective Philanthropy Pty Ltd., Melbourne, Victoria, Australia., Gabbe BJ; Emergency and Trauma Centre, The Alfred Hospital, Melbourne VIC 3004, Australia.; Health Data Research UK, Swansea University Medical School, Swansea University, Singleton Park, United Kingdom., Fitzgerald M; Curtin Health Innovation Research Institute, Faculty of Health Sciences, Curtin University, Bentley, Western Australia, Australia.; Perron Institute for Neurological and Translational Science, Nedlands, Western Australia, Australia.
المصدر: Neurotrauma reports [Neurotrauma Rep] 2024 Apr 11; Vol. 5 (1), pp. 387-408. Date of Electronic Publication: 2024 Apr 11 (Print Publication: 2024).
نوع المنشور: Journal Article
اللغة: English
بيانات الدورية: Publisher: Mary Ann Liebert, Inc Country of Publication: United States NLM ID: 101773091 Publication Model: eCollection Cited Medium: Internet ISSN: 2689-288X (Electronic) Linking ISSN: 2689288X NLM ISO Abbreviation: Neurotrauma Rep Subsets: PubMed not MEDLINE
أسماء مطبوعة: Original Publication: New Rochelle, NY : Mary Ann Liebert, Inc., [2020]-
مستخلص: The Australian Traumatic Brain Injury Initiative (AUS-TBI) aims to select a set of measures to comprehensively predict and assess outcomes following moderate-to-severe traumatic brain injury (TBI) across Australia. The aim of this article was to report on the implementation and findings of an evidence-based consensus approach to develop AUS-TBI recommendations for outcome measures following adult and pediatric moderate-to-severe TBI. Following consultation with a panel of expert clinicians, Aboriginal and Torres Strait Islander representatives and a Living Experience group, and preliminary literature searches with a broader focus, a decision was made to focus on measures of mortality, everyday functional outcomes, and quality of life. Standardized searches of bibliographic databases were conducted through March 2022. Characteristics of 75 outcome measures were extracted from 1485 primary studies. Consensus meetings among the AUS-TBI Steering Committee, an expert panel of clinicians and researchers and a group of individuals with lived experience of TBI resulted in the production of a final list of 11 core outcome measures: the Functional Independence Measure (FIM); Glasgow Outcome Scale-Extended (GOS-E); Satisfaction With Life Scale (SWLS) (adult); mortality; EuroQol-5 Dimensions (EQ5D); Mayo-Portland Adaptability Inventory (MPAI); Return to Work /Study (adult and pediatric); Functional Independence Measure for Children (WEEFIM); Glasgow Outcome Scale Modified for Children (GOS-E PEDS); Paediatric Quality of Life Scale (PEDS-QL); and Strengths and Difficulties Questionnaire (pediatric). These 11 outcome measures will be included as common data elements in the AUS-TBI data dictionary. Review Registration PROSPERO (CRD42022290954).
Competing Interests: D.J.C. occasionally consults to Pressure P/L, with all funds being given to Monash University. M.F. is the CEO of the charitable organization Connectivity - Traumatic Brain Injury Australia. The other authors have nothing to disclose.
(© Jennie L. Ponsford et al., 2024; Published by Mary Ann Liebert, Inc.)
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فهرسة مساهمة: Keywords: common data elements; outcome measures; review; traumatic brain injury
تواريخ الأحداث: Date Created: 20240424 Latest Revision: 20240426
رمز التحديث: 20240426
مُعرف محوري في PubMed: PMC11035854
DOI: 10.1089/neur.2023.0127
PMID: 38655112
قاعدة البيانات: MEDLINE
الوصف
تدمد:2689-288X
DOI:10.1089/neur.2023.0127