دورية أكاديمية
Healthcare communication satisfaction and psychosocial outcomes in adolescents and young adults with differences of sex development.
| العنوان: | Healthcare communication satisfaction and psychosocial outcomes in adolescents and young adults with differences of sex development. |
|---|---|
| المؤلفون: | Liles SM; Center for Biobehavioral Health, The Abigail Wexner Research Institute, Nationwide Children's Hospital, Columbus, USA., Crerand CE; Center for Biobehavioral Health, The Abigail Wexner Research Institute, Nationwide Children's Hospital, Columbus, USA; Nationwide Children's Hospital, Columbus, USA; Department of Pediatrics, The Ohio State University College of Medicine, Columbus, USA; Department of Plastic Surgery, The Ohio State University College of Medicine, Columbus, USA., Buchanan C; Univeristy of Colorado Anschutz Medical Campus, Department of Psychiatry, Children's Hospital of Colorado, Aurora, USA., Chan YM; Division of Endocrinology, Department of Pediatrics, Boston Children's Hospital, Boston, USA; Department of Pediatrics, Harvard Medical School, Boston, USA., Chen D; Potocsnak Family Division of Adolescent and Young Adult Medicine, Ann & Robert H. Lurie Children's Hospital of Chicago, Chicago, USA; Pritzker Department of Psychiatry and Behavioral Health, Ann & Robert H. Lurie Children's Hospital of Chicago, Chicago, USA; Departments of Psychiatry and Behavioral Sciences, and Pediatrics, Northwestern University Feinberg School of Medicine, Chicago, USA., Hansen-Moore J; Nationwide Children's Hospital, Columbus, USA; Department of Pediatrics, The Ohio State University College of Medicine, Columbus, USA., Tishelman AC; Department of Psychology and Neuroscience, Boston College, Boston, USA., Umbaugh H; Center for Biobehavioral Health, The Abigail Wexner Research Institute, Nationwide Children's Hospital, Columbus, USA; Nationwide Children's Hospital, Columbus, USA., Nahata L; Center for Biobehavioral Health, The Abigail Wexner Research Institute, Nationwide Children's Hospital, Columbus, USA; Nationwide Children's Hospital, Columbus, USA; Department of Pediatrics, The Ohio State University College of Medicine, Columbus, USA. Electronic address: leena.nahata@nationwidechildrens.org. |
| المصدر: | Patient education and counseling [Patient Educ Couns] 2024 Aug; Vol. 125, pp. 108294. Date of Electronic Publication: 2024 Apr 18. |
| نوع المنشور: | Journal Article |
| اللغة: | English |
| بيانات الدورية: | Publisher: Elsevier Country of Publication: Ireland NLM ID: 8406280 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1873-5134 (Electronic) Linking ISSN: 07383991 NLM ISO Abbreviation: Patient Educ Couns Subsets: MEDLINE |
| أسماء مطبوعة: | Publication: Limerick : Elsevier Original Publication: Princeton, N.J. : Excerpta Medica, c1983- |
| مواضيع طبية MeSH: | Communication* , Quality of Life*/psychology , Patient Satisfaction*, Humans ; Adolescent ; Female ; Male ; Young Adult ; Adult ; Disorders of Sex Development/psychology ; Child ; Adaptation, Psychological ; Surveys and Questionnaires ; Resilience, Psychological |
| مستخلص: | Objectives: We examined: (1) healthcare communication satisfaction and psychosocial outcomes (resilience, QoL, and psychological adjustment) in adolescents and young adults (AYA) with differences of sex development (DSD), (2) differences in psychosocial outcomes between those who were highly satisfied and those who were less satisfied, and (3) group differences between adolescents (ages 12-17) and young adults (ages 18-26) regarding associations with healthcare communication and psychosocial outcomes. Methods: AYA with DSD across four study sites reported on satisfaction with healthcare communication and psychosocial outcomes. Analyses included descriptive statistics (aim 1), independent samples t-tests (aim 2), and Pearson's correlations (aim 3). Results: Participants reported high levels of satisfaction with healthcare communication. Higher healthcare communication satisfaction was associated with greater resilience (p = .01), better QoL (p = .02), and fewer internalizing problems (p = .04). For adolescents, higher healthcare communication satisfaction was associated with better psychosocial outcomes (p values ranging from.01-.04). No significant associations were found in the young adult group. Conclusions: Satisfaction with healthcare communication is related to positive psychosocial outcomes in adolescents with DSD. Practice Implications: These data underscore the importance of optimizing communication with families, engaging AYA in early and ongoing discussions about their care, and including psychosocial providers in DSD care. Competing Interests: Declaration of Competing Interest The authors declare that they have no known competing financial interests or personal relationships that could have appeared to influence the work reported in this paper. (Copyright © 2024 The Authors. Published by Elsevier B.V. All rights reserved.) |
| معلومات مُعتمدة: | R21 HD089526 United States HD NICHD NIH HHS |
| فهرسة مساهمة: | Keywords: Information sharing; Quality of life; Resilience |
| تواريخ الأحداث: | Date Created: 20240426 Date Completed: 20240524 Latest Revision: 20240524 |
| رمز التحديث: | 20240525 |
| DOI: | 10.1016/j.pec.2024.108294 |
| PMID: | 38669761 |
| قاعدة البيانات: | MEDLINE |
Full Text via ClinicalKey 
Full Text Finder | تدمد: | 1873-5134 |
|---|---|
| DOI: | 10.1016/j.pec.2024.108294 |