التفاصيل البيبلوغرافية
| العنوان: |
"Crafting a 'TransitionOmeter': A Proposed Framework for Developing and Honing Capabilities of Young People Transitioning to Adult Healthcare Services." |
| المؤلفون: |
Levy S; Usher Institute, University of Edinburgh, Edinburgh, UK., Wynd AHD; Spina Bifida Hydrocephalus Scotland, Glasgow, UK., Motee A; Heriot-Watt University, Edinburgh, UK. |
| المصدر: |
Comprehensive child and adolescent nursing [Compr Child Adolesc Nurs] 2024 Jun; Vol. 47 (2), pp. 86-97. Date of Electronic Publication: 2024 May 07. |
| نوع المنشور: |
Journal Article; Systematic Review |
| اللغة: |
English |
| بيانات الدورية: |
Publisher: Taylor & Francis Group Country of Publication: England NLM ID: 101682864 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 2469-4207 (Electronic) NLM ISO Abbreviation: Compr Child Adolesc Nurs Subsets: MEDLINE |
| أسماء مطبوعة: |
Original Publication: [Abingdon, OX] : Taylor & Francis Group, [2016]- |
| مواضيع طبية MeSH: |
Spinal Dysraphism*/psychology , Spinal Dysraphism*/therapy , Transition to Adult Care*/standards , Transition to Adult Care*/trends, Humans ; Adolescent ; Adult ; Child ; Qualitative Research |
| مستخلص: |
This paper focuses on an innovative approach to preparing children and young people, with Spina Bifida, to move from child-centered to adult-oriented healthcare systems. Reflecting on our role in delivering a national nurse led service, we set to identify and critique international transition tools in use for this population. Specifically, we aimed to identify the core capabilities and indicators of progression to successful transition, so that holistic interventions could be planned to match the needs of individuals and their carers. There were two phases to the study, initially focusing on a systematic literature review on transition tools and the specific items that these tools captured, including skills, abilities and behaviors. Phase two culminated in the articulation of a segmented and incremental "road map", aligned with facets deemed essential for a successful healthcare transition. The reporting of the literature review (phase one) followed the PRISMA guidelines and shaped the qualitative element of the study (phase two) through the use of semi-structured interviews and thematic analysis. The search strategy yielded 11 studies, which were then manually searched for other relevant literature, adding a further 14 articles. The review analyzed 7 specific tools for spina bifida and 8 generic tools, which were deemed appropriate for this group of patients. A comprehensive list of core capabilities was then articulated and framed to fit a progression timeline. Specific interventions were formulated to explore ways to co-produce resources that could enhance and support a planned transition to adult-focused services. Our proposed mapping of capabilities and progression could shape other transition programs, where nurses work collaboratively with young people, carers and other members of a team. More work is needed to further explore and embed the framework that, as we did, could be digitized and shared with all stakeholders involved in the transition process. |
| فهرسة مساهمة: |
Keywords: Spina bifida; data driven innovation; systematic literature review; transfer of care; transition |
| تواريخ الأحداث: |
Date Created: 20240507 Date Completed: 20240626 Latest Revision: 20240627 |
| رمز التحديث: |
20240628 |
| DOI: |
10.1080/24694193.2024.2348830 |
| PMID: |
38713540 |
| قاعدة البيانات: |
MEDLINE |
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