دورية أكاديمية
Cancer Registry Enrichment via Linkage with Hospital-Based Electronic Medical Records: A Pilot Investigation.
| العنوان: | Cancer Registry Enrichment via Linkage with Hospital-Based Electronic Medical Records: A Pilot Investigation. |
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| المؤلفون: | Hernandez MN; Florida Cancer Data System, Sylvester Comprehensive Cancer Center, University of Miami Miller School of Medicine., Voti L; Florida Cancer Data System, Sylvester Comprehensive Cancer Center, University of Miami Miller School of Medicine., Feldman JD; Florida Department of Health, Bureau of Epidemiology., Tannenbaum SL; Sylvester Comprehensive Cancer Center, University of Miami Miller School of Medicine., Scharber W; Registry Widgets, Inc., MacKinnon JA; Florida Cancer Data System, Sylvester Comprehensive Cancer Center, University of Miami Miller School of Medicine., Lee DJ; Florida Cancer Data System, Sylvester Comprehensive Cancer Center, University of Miami Miller School of Medicine.; Department of Epidemiology and Public Health, Miller School of Medicine, University of Miami., Huang YX; Florida Department of Health, Bureau of Epidemiology. |
| المصدر: | Journal of registry management [J Registry Manag] 2024 Spring; Vol. 51 (1), pp. 41-48. |
| نوع المنشور: | Journal Article |
| اللغة: | English |
| بيانات الدورية: | Publisher: National Cancer Registrars Association, Inc Country of Publication: United States NLM ID: 9804163 Publication Model: Print Cited Medium: Print ISSN: 1945-6123 (Print) Linking ISSN: 19456131 NLM ISO Abbreviation: J Registry Manag Subsets: MEDLINE |
| أسماء مطبوعة: | Publication: Alexandria, VA : National Cancer Registrars Association, Inc. Original Publication: Lenexa, KS : National Cancer Registrars Association, |
| مواضيع طبية MeSH: | Registries* , Electronic Health Records* , Medical Record Linkage*, Humans ; Pilot Projects ; Florida/epidemiology ; Female ; Breast Neoplasms/epidemiology ; Breast Neoplasms/therapy ; Neoplasms/epidemiology ; Neoplasms/therapy |
| مستخلص: | Background: Hospital electronic medical record (EMR) systems are becoming increasingly integrated for management of patient data, especially given recent policy changes issued by the Centers for Medicaid and Medicare Services. In addition to data management, these data provide evidence for patient-centered outcomes research for a range of diseases, including cancer. Integrating EMR patient data with existing disease registries strengthens all essential components for assuring optimal health outcomes. Objectives: To identify the mechanisms for extracting, linking, and processing hospital EMR data with the Florida Cancer Data System (FCDS); and to assess the completeness of existing registry treatment data as well as the potential for data enhancement. Methods: A partnership among the Florida Department of Health, FCDS, and a large Florida hospital system was established to develop methods for hospital EMR extraction and transmission. Records for admission years between 2007 and 2010 were extracted using ICD-9-CM codes as the trigger and were linked with the cancer registry for patients with invasive cancers of the breast. Results: A total of 11,506 unique patients were linked with a total of 12,804 unique breast tumors. Evaluation of existing registry treatment data against the hospital EMR produced a total of 5% of registry records with updated surgery information, 1% of records with updated radiation information, and 7% of records updated with chemotherapy information. Enhancement of registry treatment information was particularly affected by the availability of chemotherapy medications data. Conclusion: Hospital EMR linkages to cancer disease registries is feasible but challenged by lack of standards for data collection, coding and transmission, comprehensive description of available data, and the exclusion of certain hospital datasets. The FCDS standard treatment data variables are highly robust and complete but can be enhanced by the addition of detailed chemotherapy regimens that are commonly used in patient centered outcomes research. (© 2024 National Cancer Registrars Association.) |
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| فهرسة مساهمة: | Keywords: cancer registries; data linkage; hospital electronic medical record |
| تواريخ الأحداث: | Date Created: 20240617 Date Completed: 20240617 Latest Revision: 20240618 |
| رمز التحديث: | 20240618 |
| مُعرف محوري في PubMed: | PMC11178108 |
| PMID: | 38881985 |
| قاعدة البيانات: | MEDLINE |
| تدمد: | 1945-6123 |
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