دورية أكاديمية
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Experiences from patients in mental healthcare accessing their electronic health records: results from a cross-national survey in Estonia, Finland, Norway, and Sweden.

التفاصيل البيبلوغرافية
العنوان: Experiences from patients in mental healthcare accessing their electronic health records: results from a cross-national survey in Estonia, Finland, Norway, and Sweden.
المؤلفون: Fagerlund AJ; Norwegian Centre for E-health Research, University Hospital of North Norway, Tromsø, Norway., Bärkås A; Participatory eHealth and Health Data Research Group, Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden. annika.barkas@kbh.uu.se.; MedTech Science & Innovation Centre, Uppsala University Hospital, Dag Hammarskjölds väg 14b, 1 floor, Uppsala, 75185, Sweden. annika.barkas@kbh.uu.se., Kharko A; Participatory eHealth and Health Data Research Group, Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden.; MedTech Science & Innovation Centre, Uppsala University Hospital, Dag Hammarskjölds väg 14b, 1 floor, Uppsala, 75185, Sweden.; Faculty of Health, University of Plymouth, Plymouth, UK., Blease CR; Participatory eHealth and Health Data Research Group, Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden.; MedTech Science & Innovation Centre, Uppsala University Hospital, Dag Hammarskjölds väg 14b, 1 floor, Uppsala, 75185, Sweden.; Digital Psychiatry, Dept of Psychiatry, Beth Israel Deaconess Medical Center, Harvard Medical School, Boston, MA, USA., Hagström J; Participatory eHealth and Health Data Research Group, Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden.; MedTech Science & Innovation Centre, Uppsala University Hospital, Dag Hammarskjölds väg 14b, 1 floor, Uppsala, 75185, Sweden., Huvila I; Department of ALM, Uppsala University, Uppsala, Sweden., Hörhammer I; Department of Computer Science, Aalto University, Espoo, Finland., Kane B; Participatory eHealth and Health Data Research Group, Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden.; Business School, Karlstad University, Karlstad, Sweden.; Centre for Health Policy and Management, Trinity College Dublin, Dublin, Ireland., Kristiansen E; Norwegian Centre for E-health Research, University Hospital of North Norway, Tromsø, Norway., Kujala S; Department of Computer Science, Aalto University, Espoo, Finland., Moll J; Centre for Empirical Research on Information systems, School of Business, Örebro University, Örebro, Sweden., Rexhepi H; School of Informatics, University of Skövde, Skövde, Sweden., Scandurra I; Centre for Empirical Research on Information systems, School of Business, Örebro University, Örebro, Sweden., Simola S; Department of Computer Science, Aalto University, Espoo, Finland., Soone H; E-Medicine Centre, Department of Health Technologies, Tallinn University of Technology, Tallinn, Estonia., Wang B; Norwegian Centre for E-health Research, University Hospital of North Norway, Tromsø, Norway., Åhlfeldt RM; School of Informatics, University of Skövde, Skövde, Sweden., Hägglund M; Participatory eHealth and Health Data Research Group, Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden.; MedTech Science & Innovation Centre, Uppsala University Hospital, Dag Hammarskjölds väg 14b, 1 floor, Uppsala, 75185, Sweden., Johansen MA; Norwegian Centre for E-health Research, University Hospital of North Norway, Tromsø, Norway.
المصدر: BMC psychiatry [BMC Psychiatry] 2024 Jul 02; Vol. 24 (1), pp. 481. Date of Electronic Publication: 2024 Jul 02.
نوع المنشور: Journal Article
اللغة: English
بيانات الدورية: Publisher: BioMed Central Country of Publication: England NLM ID: 100968559 Publication Model: Electronic Cited Medium: Internet ISSN: 1471-244X (Electronic) Linking ISSN: 1471244X NLM ISO Abbreviation: BMC Psychiatry Subsets: MEDLINE
أسماء مطبوعة: Original Publication: London : BioMed Central, [2001-
مواضيع طبية MeSH: Electronic Health Records*/statistics & numerical data , Mental Health Services*/statistics & numerical data, Humans ; Male ; Female ; Adult ; Middle Aged ; Estonia ; Norway ; Finland ; Sweden ; Surveys and Questionnaires ; Young Adult ; Aged ; Patient Access to Records ; Adolescent
مستخلص: Background: Patients' online record access (ORA) enables patients to read and use their health data through online digital solutions. One such solution, patient-accessible electronic health records (PAEHRs) have been implemented in Estonia, Finland, Norway, and Sweden. While accumulated research has pointed to many potential benefits of ORA, its application in mental healthcare (MHC) continues to be contested. The present study aimed to describe MHC users' overall experiences with national PAEHR services.
Methods: The study analysed the MHC-part of the NORDeHEALTH 2022 Patient Survey, a large-scale multi-country survey. The survey consisted of 45 questions, including demographic variables and questions related to users' experiences with ORA. We focused on the questions concerning positive experiences (benefits), negative experiences (errors, omissions, offence), and breaches of security and privacy. Participants were included in this analysis if they reported receiving mental healthcare within the past two years. Descriptive statistics were used to summarise data, and percentages were calculated on available data.
Results: 6,157 respondents were included. In line with previous research, almost half (45%) reported very positive experiences with ORA. A majority in each country also reported improved trust (at least 69%) and communication (at least 71%) with healthcare providers. One-third (29.5%) reported very negative experiences with ORA. In total, half of the respondents (47.9%) found errors and a third (35.5%) found omissions in their medical documentation. One-third (34.8%) of all respondents also reported being offended by the content. When errors or omissions were identified, about half (46.5%) reported that they took no action. There seems to be differences in how patients experience errors, omissions, and missing information between the countries. A small proportion reported instances where family or others demanded access to their records (3.1%), and about one in ten (10.7%) noted that unauthorised individuals had seen their health information.
Conclusions: Overall, MHC patients reported more positive experiences than negative, but a large portion of respondents reported problems with the content of the PAEHR. Further research on best practice in implementation of ORA in MHC is therefore needed, to ensure that all patients may reap the benefits while limiting potential negative consequences.
(© 2024. The Author(s).)
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فهرسة مساهمة: Keywords: EHRs; Electronic health records; Mental healthcare; ORA; Online record access; PAEHR; Patient-accessible electronic health records
تواريخ الأحداث: Date Created: 20240703 Date Completed: 20240703 Latest Revision: 20240705
رمز التحديث: 20240705
مُعرف محوري في PubMed: PMC11220963
DOI: 10.1186/s12888-024-05916-8
PMID: 38956493
قاعدة البيانات: MEDLINE
الوصف
تدمد:1471-244X
DOI:10.1186/s12888-024-05916-8