دورية أكاديمية
Health-related quality of life following aortopexy for tracheomalacia: a cross-sectional study.
| العنوان: | Health-related quality of life following aortopexy for tracheomalacia: a cross-sectional study. |
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| المؤلفون: | Brockbank BL; UCL Great Ormond Street Institute of Child Health, 30 Guilford Street, London, WC1N 1EH, UK., Dewar GSJ; Cardiothoracic Surgery Department, Dunedin Hospital, Dunedin, New Zealand., Hewitt RJ; Great Ormond Street Hospital NHS Foundation Trust, London, UK., Butler CR; Great Ormond Street Hospital NHS Foundation Trust, London, UK., Wray J; Great Ormond Street Hospital NHS Foundation Trust, London, UK. |
| المصدر: | Interdisciplinary cardiovascular and thoracic surgery [Interdiscip Cardiovasc Thorac Surg] 2024 Jul 03. Date of Electronic Publication: 2024 Jul 03. |
| Publication Model: | Ahead of Print |
| نوع المنشور: | Journal Article |
| اللغة: | English |
| بيانات الدورية: | Publisher: Oxford University Press Country of Publication: England NLM ID: 9918540787006676 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 2753-670X (Electronic) Linking ISSN: 2753670X NLM ISO Abbreviation: Interdiscip Cardiovasc Thorac Surg Subsets: MEDLINE |
| أسماء مطبوعة: | Original Publication: [Oxford, England] : Oxford University Press, [2023]- |
| مستخلص: | Objectives: The objective was to measure health-related quality of life (HRQoL) of children following treatment of all-cause tracheomalacia with aortopexy. Methods: Children ≥5 years and parents of children <18 years who had undergone aortopexy completed the Paediatric Quality of Life Inventory (PedsQL4.0). Scores were compared to published norms. Results: Completed questionnaires were received from 35 parents (65%) and 10 children (38%). Median age at aortopexy was 9.8 months (1 month-12.7 years) and median years of follow-up was 2.6 (4 months-6.9 years). Children who completed questionnaires had a median age of 8.4 (5.7-13.4) years. Parent and child-reported total PedsQL scores were 69.61 (SD : 19.74), and 63.15 (SD : 20.40) respectively. Half of parents and 80% of children reported scores suggesting poor HRQoL outcomes. Parent-reported total, physical and psycho-social scores were lower than those of healthy children and those with acute illness but comparable to children with chronic health conditions and cardiovascular disease. Similarly, children themselves reported comparable total scores to children with chronic illness but child-reported psycho-social scores were lower in the aortopexy group than any other group. There was no association between PedsQL scores and cause of malacia, age or time since aortopexy. The presence of complex congenital comorbidities had a significant (p < 0.05) impact on HRQoL scores. Conclusions: Following aortopexy children remain at risk of poor HRQoL, especially those with complex comorbidities. HRQoL reported by both parent and child provides important insight into the lives of children following this procedure. Further longitudinal and qualitative study are required to better understand this complex group. (© The Author(s) 2024. Published by Oxford University Press on behalf of the European Association for Cardio-Thoracic Surgery.) |
| فهرسة مساهمة: | Keywords: Aortopexy; health-related quality of life; paediatric; quality of life; tracheomalacia |
| تواريخ الأحداث: | Date Created: 20240703 Latest Revision: 20240703 |
| رمز التحديث: | 20240704 |
| DOI: | 10.1093/icvts/ivae121 |
| PMID: | 38960728 |
| قاعدة البيانات: | MEDLINE |
| تدمد: | 2753-670X |
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| DOI: | 10.1093/icvts/ivae121 |