دورية أكاديمية
أعرض في EDS

Resource use and costs of transitioning from paediatric to adult care for patients with chronic endocrine disease.

التفاصيل البيبلوغرافية
العنوان: Resource use and costs of transitioning from paediatric to adult care for patients with chronic endocrine disease.
المؤلفون: Choukair D; Department of Paediatrics I, University Children's Hospital Heidelberg, Heidelberg, Germany.; Center for Rare Diseases, University Hospital Heidelberg, Heidelberg, Germany., Mittnacht J; Department of Paediatrics I, University Children's Hospital Heidelberg, Heidelberg, Germany., Treiber D; Department of Paediatrics I, University Children's Hospital Heidelberg, Heidelberg, Germany., Hoffmann GF; Department of Paediatrics I, University Children's Hospital Heidelberg, Heidelberg, Germany.; Center for Rare Diseases, University Hospital Heidelberg, Heidelberg, Germany., Grasemann C; Department of Paediatrics, St-Josef Hospital Bochum and Center for Rare Diseases, Ruhr-University Bochum, Bochum, Germany., Huebner A; Department of Paediatrics, Faculty of Medicine and University Hospital Carl Gustav Carus, Technische Universität Dresden, Dresden, Germany., Berner R; Department of Paediatrics, Faculty of Medicine and University Hospital Carl Gustav Carus, Technische Universität Dresden, Dresden, Germany., Burgard P; Department of Paediatrics I, University Children's Hospital Heidelberg, Heidelberg, Germany., Szendroedi J; Department of Endocrinology, Diabetology, Metabolism and Clinical Chemistry (Internal Medicine 1), Heidelberg University Hospital, Heidelberg, Germany., Bettendorf M; Department of Paediatrics I, University Children's Hospital Heidelberg, Heidelberg, Germany.; Center for Rare Diseases, University Hospital Heidelberg, Heidelberg, Germany.
المصدر: Clinical endocrinology [Clin Endocrinol (Oxf)] 2024 Aug; Vol. 101 (2), pp. 121-129. Date of Electronic Publication: 2024 Jun 21.
نوع المنشور: Journal Article
اللغة: English
بيانات الدورية: Publisher: Blackwell Publishing Country of Publication: England NLM ID: 0346653 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1365-2265 (Electronic) Linking ISSN: 03000664 NLM ISO Abbreviation: Clin Endocrinol (Oxf) Subsets: MEDLINE
أسماء مطبوعة: Publication: <2003->: Oxford : Blackwell Publishing
Original Publication: Oxford, Blackwell Scientific Publications.
مواضيع طبية MeSH: Endocrine System Diseases*/therapy , Endocrine System Diseases*/economics , Transition to Adult Care*/economics, Humans ; Adolescent ; Male ; Female ; Young Adult ; Adult ; Prospective Studies ; Chronic Disease/economics ; Child ; Health Care Costs
مستخلص: Objective: Structured transition of adolescents and young adults with a chronic endocrine disease from paediatric to adult care is important. Until now, no data on time and resources required for the necessary components of the transition process and the associated costs are available.
Design, Patients and Measurements: In a prospective cohort study of 147 patients with chronic endocrinopathies, for the key elements of a structured transition pathway including (i) assessment of patients' disease-related knowledge and needs, (ii) required education and counselling sessions, (iii) compiling an epicrisis and a transfer appointment of the patient together with the current paediatric and the future adult endocrinologist resource consumption and costs were determined.
Results: One hundred and forty-three of 147 enroled patients (97.3%) completed the transition pathway and were transferred to adult care. The mean time from the decision to start the transition process to the final transfer consultation was 399 ± 159 days. Transfer consultations were performed in 143 patients, including 128 patients jointly with the future adult endocrinologist. Most consultations were performed by a multidisciplinary team consisting of a paediatric and adult endocrinologist, psychologist, nurse, and a social worker acting also as a case manager with a median of three team members and lasted 87.6 ± 23.7 min. The mean cumulative costs per patient of all key elements were 519 ± 206 Euros. In addition, costs for case management through the transition process were 104.8 ± 28.0 Euros.
Conclusions: Using chronic endocrine diseases as an example, it shows how to calculate the time and cost of a structured transition pathway from paediatric to adult care, which can serve as a starting point for sustainable funding for other chronic rare diseases.
(© 2024 The Author(s). Clinical Endocrinology published by John Wiley & Sons Ltd.)
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معلومات مُعتمدة: Deutsche Forschungsgemeinschaft; Gemeinsame Bundesausschuss
فهرسة مساهمة: Keywords: chronic endocrine disease; costs; empowerment; health literacy; transition from paediatric to adult care
تواريخ الأحداث: Date Created: 20240709 Date Completed: 20240709 Latest Revision: 20240720
رمز التحديث: 20240721
DOI: 10.1111/cen.15105
PMID: 38979902
قاعدة البيانات: MEDLINE
الوصف
تدمد:1365-2265
DOI:10.1111/cen.15105