دورية أكاديمية
Online healthcare transition resources for pediatric neurosurgical care: supporting the journey of individuals living with spina bifida.
| العنوان: | Online healthcare transition resources for pediatric neurosurgical care: supporting the journey of individuals living with spina bifida. |
|---|---|
| المؤلفون: | Malhotra A; 1Department of Pediatrics, SUNY Upstate Medical University, Syracuse, New York., Locastro MM; 1Department of Pediatrics, SUNY Upstate Medical University, Syracuse, New York., Castillo H; 2Department of Obstetrics and Gynecology, Baylor College of Medicine, Houston, Texas.; Departments of3Pediatrics and., Lozano-Ramirez JF; 4Instituto de Pediatria, Hospital Zambrano Hellion-TecSalud, Tecnologico de Monterrey, Escuela de Medicina y Ciencias de la Salud, Monterrey, Nuevo Leon, Mexico; and., Gandy K; 5Department of Social Sciences, University of Houston, Texas., Bradko V; Departments of3Pediatrics and., Lai GY; 6Neurosurgery, University of Nebraska Medical Center, Omaha, Nebraska., Castillo J; 2Department of Obstetrics and Gynecology, Baylor College of Medicine, Houston, Texas.; Departments of3Pediatrics and. |
| المصدر: | Neurosurgical focus [Neurosurg Focus] 2024 Aug 01; Vol. 57 (2), pp. E6. |
| نوع المنشور: | Journal Article |
| اللغة: | English |
| بيانات الدورية: | Publisher: American Association of Neurological Surgeons Country of Publication: United States NLM ID: 100896471 Publication Model: Print Cited Medium: Internet ISSN: 1092-0684 (Electronic) Linking ISSN: 10920684 NLM ISO Abbreviation: Neurosurg Focus Subsets: MEDLINE |
| أسماء مطبوعة: | Original Publication: Charlottesville, VA : American Association of Neurological Surgeons, c1996- |
| مواضيع طبية MeSH: | Spinal Dysraphism*/surgery, Humans ; Internet ; Transition to Adult Care ; Neurosurgical Procedures/methods ; Child ; Adolescent ; Young Adult ; Adult ; Neurosurgery |
| مستخلص: | Objective: In the global environment in which neurosurgical providers practice, there is a pressing need to identify and highlight online resources to support families shifting from pediatric to adult-centered spina bifida (SB) care in general and neurosurgical care in particular. The purpose of this paper was to identify high-quality resources for clinicians and families of individuals affected by SB to be utilized during the transition years. With knowledge of, and access to, these online resources, neurosurgical providers can aim to make the transition process effective, to improve the quality of care for young adults with SB. Methods: All identified online resources were found on the GOT TRANSITION platform and by searching "spina bifida transition resources" between January and March 2024. Resources were coded for transition focus areas and stratified into predefined categories: 1) education for clinicians, 2) preparation for youth and families, 3) educational/school, and 4) employment and independent living. Results: A total of 160 websites were cataloged; 11% of websites focused on medical provider education, 44% on preparation for youth, 29% on educational/school resources, and 16% on employment and independent living. Conclusions: In the global environment of today's medicine, online transition resources are available to assist clinicians and families in the transition process of individuals living with SB. With improved knowledge and utilization of online transition resources, neurosurgical providers can better serve individuals with SB and their families to improve quality of care with the aim of improving lifelong outcomes. |
| فهرسة مساهمة: | Keywords: adolescent care; healthcare transitions; independence; myelomeningocele; self-management; transition readiness; transition to adult care |
| تواريخ الأحداث: | Date Created: 20240801 Date Completed: 20240801 Latest Revision: 20240801 |
| رمز التحديث: | 20240802 |
| DOI: | 10.3171/2024.6.FOCUS24272 |
| PMID: | 39088853 |
| قاعدة البيانات: | MEDLINE |
| تدمد: | 1092-0684 |
|---|---|
| DOI: | 10.3171/2024.6.FOCUS24272 |