دورية أكاديمية

Spina bifida transition care in India: strengths amidst challenges.

التفاصيل البيبلوغرافية
العنوان: Spina bifida transition care in India: strengths amidst challenges.
المؤلفون: Udayakumaran S; 1Division of Paediatric Neurosurgery and Craniofacial Surgery, Amrita Institute of Medical Sciences and Research Centre, Kochi, Kerala., Manda VV; 2Department of Neurosurgery, Rangaraya Medical College, Kakinada, Andhra Pradesh., Kedia S; 3Department of Neurosurgery, All India Institute of Medical Sciences, New Delhi., Biradar H; 4Department of Neurosurgery, Shri BM Patil Medical College, Vijayapur, Karnataka., Mahapatra AK; 5Department of Neurosurgery, IMS & SUM Hospital, SOA University, Bhubaneswar, Odisha., Kottakki MNR; 6Spina Bifida and Head Injury Program, King George Hospital at Andhra Medical College, Visakhapatnam, Andhra Pradesh, India; and., Pattisapu JV; 7Pediatric Neurosurgery Program, University of Central Florida College of Medicine, Orlando, Florida.
المصدر: Neurosurgical focus [Neurosurg Focus] 2024 Aug 01; Vol. 57 (2), pp. E5.
نوع المنشور: Journal Article
اللغة: English
بيانات الدورية: Publisher: American Association of Neurological Surgeons Country of Publication: United States NLM ID: 100896471 Publication Model: Print Cited Medium: Internet ISSN: 1092-0684 (Electronic) Linking ISSN: 10920684 NLM ISO Abbreviation: Neurosurg Focus Subsets: MEDLINE
أسماء مطبوعة: Original Publication: Charlottesville, VA : American Association of Neurological Surgeons, c1996-
مواضيع طبية MeSH: Spinal Dysraphism*/therapy , Transition to Adult Care*/trends, Humans ; India ; Adult ; Telemedicine/trends ; Child
مستخلص: In India, adult neurosurgeons are required to care for children regularly because the concept of dedicated pediatric specialty care is not yet entirely established in the subcontinent. Likewise, pediatric neurosurgeons do not exclusively offer their services to the young, but they also provide care to adult patients with neurosurgical disorders. This creates a medical system where the transition between specialties is not often a formal and recognized aspect of neurosurgical care because most neurosurgeons provide care for patients of all ages. Additionally, there are very few teams geared toward caring for conditions in children that merit lifelong medical support, with spina bifida (SB) being one of them. Since there are no focused or structured pediatric programs on a large scale, developing a multidisciplinary clinic for adults becomes challenging. A pragmatic approach using technology-based education, supported by an organized system or a coordinator, may be a new strategy. A new system utilizing telemedicine and smartphones for established patients maybe an alternative option for SB children in India. During virtual video conferences, an established patient may benefit from multispecialty care and education toward a smooth transition that avoids significant issues with time, transportation, or financial constraints. Achieving a seamless transition among allied specialists from the pediatric to adult systems is a utopia. The current system in the subcontinent may be improved, with an opportunity to develop smooth transition care between coordinated specialists (who simultaneously treat children and adults). Learning from various global SB management styles, the Indian transition situation may offer another model in the near future.
فهرسة مساهمة: Keywords: India; adult spina bifida; care coordination; child to adult care; pediatric neurosurgery; transition
تواريخ الأحداث: Date Created: 20240801 Date Completed: 20240801 Latest Revision: 20240801
رمز التحديث: 20240802
DOI: 10.3171/2024.6.FOCUS24266
PMID: 39088854
قاعدة البيانات: MEDLINE
الوصف
تدمد:1092-0684
DOI:10.3171/2024.6.FOCUS24266