التفاصيل البيبلوغرافية
| العنوان: |
Translational Research and Health Equity: Gene Therapies for Sickle Cell Disease as a Case Study. |
| المؤلفون: |
Majumder, Mary A., Fasipe, Titilope |
| المصدر: |
Ethics & Human Research; May2024, Vol. 46 Issue 3, p34-39, 6p |
| مصطلحات موضوعية: |
SICKLE cell anemia, TRANSLATIONAL research, GENE therapy, HEALTH equity, CELLULAR therapy |
| مستخلص: |
In August of 2023, the National Academies of Science, Engineering, and Medicine published a timely report titled "Toward Equitable Innovation in Health and Medicine: A Framework." Here, we review some of the key contributions of the report, focusing on two dimensions of equity: input equity and deployment equity. We then use the example of new gene therapies to treat sickle cell disease (SCD) as a case study of input and deployment equity in translational research. The SCD case study illustrates the need for a kind of translational bioethics with deep understanding of lived experiences and clinical realities as well as a high degree of economic and policy sophistication. [ABSTRACT FROM AUTHOR] |
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| قاعدة البيانات: |
Complementary Index |
