التفاصيل البيبلوغرافية
| العنوان: |
Are we informing our patients correctly? Evaluation of perioperative counselling for paediatric intestinal stoma formation: a national study. |
| المؤلفون: |
Roberts, Rebecca, Burdall, Oliver, Bohr, Claire, Kennard, Hilary, Lewis, Sophie, Harris, Lauren, Cusick, Eleri, Hill, Brenda, McCullagh, Majella, van Rensburg, Carla, Thomas, Erica, O'Connor, Brendan, Smith, Christeen, Shell, Deborah, Richardson, Louise, Sharrard, Alison, Scudamore, Liz, McDowell, Susan, Dick, Karen, Tullie, Lucinda |
| المصدر: |
Pediatric Surgery International; 7/15/2024, Vol. 40 Issue 1, p1-8, 8p |
| مصطلحات موضوعية: |
ENTEROSTOMY, SURGICAL stomas, CHILD patients, PEDIATRIC surgery, SOCIAL impact, ILEOSTOMY |
| مصطلحات جغرافية: |
UNITED Kingdom |
| مستخلص: |
Purpose: Adequate preoperative information is known to improve patient outcomes. We aimed to evaluate perioperative education for paediatric patients and families undergoing intestinal stoma formation. Methods: UK paediatric surgery centres were invited to recruit patients aged 6–16 years with a stoma in situ or reversed within the last 2 years. Patient and parent questionnaires were posted for potential participants. Results: Eighty-three patient/parent dyads returned questionnaires. Median age was 11.5 years (range 4.1–17.8), with 48% (n = 40) formed electively. Parents rated how well-informed they felt perioperatively out of 10 (0 poorly, 10 highly informed). Parents were better informed about surgical issues and stoma care than psychological and social impacts (7.45 vs 6.11; p < 0.0001). 54% reported surgical complications but significantly fewer patients listed these amongst the worst things about having a stoma (24.4%) when compared with psychosocial issues: distress from bag leaks (90.8%; p < 0.0001), self-consciousness (54.1%; p = 0.0001), and restricted activity (40.2%; p = 0.03). Conclusion: Parents felt well-informed for medical and practical aspects but less well-informed of psychological and lifestyle impacts of having a stoma. Surgical complications were less important to patients than the impact on daily life. Increased psychosocial information would enable families to be better prepared for life with a stoma. [ABSTRACT FROM AUTHOR] |
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| قاعدة البيانات: |
Complementary Index |
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