التفاصيل البيبلوغرافية
| العنوان: |
Carer evaluations of paediatric epilepsy services with and without epilepsy specialist nurse provision. |
| المؤلفون: |
Beesley, Rebekah E., Walton, Chris, Hindley, Daniel, Jameson, Helen, Panwar, Nitin, Lew, Adina R., Daniel, Hindley |
| المصدر: |
Seizure; Oct2021, Vol. 91, p174-180, 7p |
| مستخلص: |
Purpose: To compare paediatric epilepsy services with and without Epilepsy Specialist Nurse (ESN) provision on measures of carer satisfaction and accessibility of service.Methods: In Study 1, carers in Northern England (n = 69 with an ESN, n = 27 without an ESN), completed the Parent Report of Psychosocial Care Scale to measure satisfaction with service provision. A measure of accessibility of service was also included. In Study 2, in depth semi-structured interviews with 58 carers (51 of whom had also participated in Study 1) were examined for talk related to accessibility of service.Results: In Study 1, Satisfaction with service levels were high across all areas, (ESN areas Mdn = 9.04, IQR = 1.48, non-ESN areas Mdn = 8.29, IQR = 2.41; maximum score = 10), but with carers from ESN areas over 3 times more likely to endorse scores at the median or above relative to non-ESN areas (OR = 3.28). For accessibility, carers in ESN areas were over 5 times more likely to have a median score or higher (ESN areas Mdn = 10, IQR = 0.45, non-ESN areas Mdn = 8.4, IQR = 5, OR = 5.43). In study 2 a majority of all carers reported having made at least one attempt to contact services between appointments, for a wide range of reasons, with timely resolution reported in ESN areas, but more variable resolution occurring in non-ESN areas.Conclusion: Paediatric ESNs provide a critical and timely service to children with epilepsy and their carers. [ABSTRACT FROM AUTHOR] |
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