From smartphone supported Citizen Health Science to Cooperative Citizen Test Lab
| العنوان: | From smartphone supported Citizen Health Science to Cooperative Citizen Test Lab |
|---|---|
| المؤلفون: | Trine Rolighed Thomsen, Ulrik Bak Kirk, Frederik Mølgaard Thaysen, Carsten Obel |
| المصدر: | Thomsen, T R, Bak Kirk, U, Mølgaard Thaysen, F & Obel, C 2022, From smartphone supported Citizen Health Science to Cooperative Citizen Test Lab . in Engaging Citizen Science Conference 2022 Booklet . Engaging Citizen Science Conference 2022, Aarhus, Denmark, 25/04/2022 . Aalborg University |
| سنة النشر: | 2022 |
| الوصف: | The wide dissemination of smartphones provides new opportunities for Citizen Health Science, based on citizenvalue creation of P4 Health (Participatory, Preventive, Predictive and Personalized). In the best case this maylead to better prediction and prevention of diseases and personalised support and treatment of citizen andpatient to great clinical benefit and cost reduction. However, there is at the same time a risk of ‘O4 medicine’(overtesting, overdiagnosis, overtreatment, overcharging). In this workshop we contribute with our experiencesfrom three projects that aim to bridge personal health and population health by combining 24/7 data fromsmartphones with other kinds of health data:HealthD360 - Health data that creates value for the citizenIn HealthD360 we investigate the possibilities for creating better health for the citizens by gathering data fromthe public healthcare system and linking them with data from the citizens' smartphones and wearables. Theambition is to promote more personal, secure, and coherent treatment in collaboration with patients andhealthcare professionals.We will share experiences with developing solutions to monitor diabetic foot ulcers and to support mental healthin schoolchildren.FEMaLe – Finding Endometriosis using Machine LearningThe EU-funded FEMaLe project is working on a machine-learning multi-omics platform that can analyse omicsdata sets and feed the information into a personalised predictive model. The focus of the project is to improveintervention for individuals with endometriosis, a condition where tissue normally lining the uterus grows outsidethe uterus. A combination of tools, such as a mobile application and augmented reality surgery software, will beco-created, facilitating improved disease management and the delivery of precision medicine.We will share experiences with co-creating a consensus study survey as well as the Lucy Application, which isyour personal gynecological virtual assistant, helping to take care of your female health.CoronaLytics: A 360 degree mobile/wearable data household approach to guide shared precision health anddecision-making during the COVID-19 epidemicIn the research project CoronaLytics citizen could contribute to with personal data gathered on a smartphone.Both automatic data collection of activity and heartrate data and data bases on questionnaires was used. Theproject worked with the citizen perspective and focused on daily impact on everyday life during the pandemic.We will share our gained experiences in how to engage patients and citizens in the design, development, andimplementation processes.Workshop focusBased on these experiences and those of the workshop participants, we will discuss how governance, designand analytic methods can support the development of the citizen health science concept to secure citizen valuecreation of P4 Health. We will discuss the idea of a cooperative governance model to secure data solidarity. Andhow Citizen Health Science in combination with Denmark's unique potential can secure a democratic healthmodel, where the partnership between citizens and researchers forms a population test lab. This may be theframework for the next generation of population-based research, including development and testing of personalhealth solutions based on motivated consent and participation from Danish citizens. |
| وصف الملف: | application/pdf |
| اللغة: | English |
| URL الوصول: | https://explore.openaire.eu/search/publication?articleId=dedup_wf_001::0d7ccd65c8e9782bb4a1d4d81cda3c28 https://vbn.aau.dk/da/publications/f12deda5-5309-4dec-b3d2-fa520edbddac |
| حقوق: | RESTRICTED |
| رقم الأكسشن: | edsair.dedup.wf.001..0d7ccd65c8e9782bb4a1d4d81cda3c28 |
| قاعدة البيانات: | OpenAIRE |
| الوصف غير متاح. |