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Course of life into adulthood of patients with biliary atresia: the achievement of developmental milestones in a nationwide cohort

التفاصيل البيبلوغرافية
العنوان: Course of life into adulthood of patients with biliary atresia: the achievement of developmental milestones in a nationwide cohort
المؤلفون: Adriaan R E, Potgieser, Willemien, de Vries, Yuk K, Sze, Egbert, Sieders, Henkjan J, Verkade, Robert J, Porte, Josette E H M, Hoekstra-Weebers, Jan B F, Hulscher, D C, Aronson, G, Damen, J H, Escher, L W E, van Heurn, R H J, Houwen, H A, Heij, J B F, Hulscher, C M F, Kneepkens, B G, Koot, Z J, de Langen, G, Madern, A M, van den Neucker, P M J G, Peeters, H J, Verkade, W, de Vries, D C, van der Zee
المساهمون: Paediatric Surgery, Other Research, Amsterdam Gastroenterology Endocrinology Metabolism, Paediatric Gastroenterology, RS: NUTRIM - R1 - Metabolic Syndrome, Surgery, Kindergeneeskunde, MUMC+: MA Medische Staf Kindergeneeskunde (9), Faculteit Medische Wetenschappen/UMCG, Center for Liver, Digestive and Metabolic Diseases (CLDM), Groningen Institute for Organ Transplantation (GIOT), Lifestyle Medicine (LM), Health Psychology Research (HPR)
المصدر: Journal of adolescent health, 50(6), 641-644. Elsevier USA
Journal of Adolescent Health, 50, 641-4
Journal of Adolescent Health, 50, 6, pp. 641-4
Journal of Adolescent Health, 50(6), 641-644. Elsevier Science
Journal of Adolescent Health, 50(6), 641-644. ELSEVIER SCIENCE INC
سنة النشر: 2012
مصطلحات موضوعية: Adult, Male, Pediatrics, medicine.medical_specialty, Orthotopic liver transplantation, Substance-Related Disorders, Developmental Disabilities, Portoenterostomy, Hepatic, Cohort Studies, Young Adult, Biliary atresia, Biliary Atresia, Surveys and Questionnaires, medicine, Humans, Sexual Dysfunctions, Psychological, Young adult, Netherlands, Cardiovascular diseases [NCEBP 14], business.industry, Public Health, Environmental and Occupational Health, Antisocial Personality Disorder, medicine.disease, Liver Transplantation, Transplantation, Psychiatry and Mental health, Cross-Sectional Studies, Evaluation of complex medical interventions [NCEBP 2], Psychosexual development, Pediatrics, Perinatology and Child Health, Developmental Milestone, Cohort, Gambling, Female, Independent Living, Substance use, business, Social Adjustment
الوصف: Purpose: To investigate the course of life of young adults diagnosed with biliary atresia (BA) in infancy by comparing patients who did and did not underwent transplantation with an age-matched Dutch reference group.Methods: All patients from the Dutch BA registry, aged > 18 years, were invited to complete the course of life questionnaire.Results: Forty patients participated (response = 74%). Twenty-five had not undergone transplantation; 15 had undergone orthotopic liver transplantation. One significant between-group difference was found, namely in substance use and gambling. BA patients who underwent transplantation reported less use than the reference group (p = .01, moderate effect size). Additional moderate effect sizes were found for differences in psychosexual and social development and antisocial behavior. Patients who underwent transplantation had lower scores than one or both other groups.Conclusions: Development of BA survivors who did not undergo transplantation seems not delayed, whereas that of transplanted patients does seem somewhat delayed. However, patients who underwent transplantation display less risk behavior. Larger samples are necessary to confirm these findings. (C) 2012 Society for Adolescent Health and Medicine. All rights reserved.
تدمد: 1054-139X
URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::05432e05eecd47d901500ab08c504009
https://hdl.handle.net/2066/110733
حقوق: RESTRICTED
رقم الأكسشن: edsair.doi.dedup.....05432e05eecd47d901500ab08c504009
قاعدة البيانات: OpenAIRE
الوصف
تدمد:1054139X