Assessing physical symptoms, daily functioning, and well‐being in children with achondroplasia
| العنوان: | Assessing physical symptoms, daily functioning, and well‐being in children with achondroplasia |
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| المؤلفون: | Meryl Brod, Dorthe Viuff, Alden Smith, R Will Charlton, Kathryn M. Pfeiffer, Jill Gianettoni, Sho Ota |
| المصدر: | American Journal of Medical Genetics. Part a |
| بيانات النشر: | John Wiley & Sons, Inc., 2020. |
| سنة النشر: | 2020 |
| مصطلحات موضوعية: | Male, Parents, Adolescent, Psychometrics, media_common.quotation_subject, emotional well‐being, Ear infection, Emotions, Achondroplasia, Quality of life (healthcare), social well‐being, Surveys and Questionnaires, Interview, Psychological, Genetics, medicine, physical functioning, Humans, Achondroplasia in children, Child, Genetics (clinical), observer‐reported outcome measure, media_common, business.industry, Original Articles, Focus Groups, medicine.disease, Focus group, Emotional well-being, Mental Health, Feeling, quality of life, Child, Preschool, Toileting, Original Article, Female, business, Clinical psychology |
| الوصف: | This study's purpose was to provide qualitative evidence to support the development of two observer‐reported outcome measures assessing the physical symptoms/complications of achondroplasia in children and impacts on children's quality of life. Individual/focus group concept elicitation interviews were conducted with parents of children aged 2 to |
| اللغة: | English |
| تدمد: | 1552-4833 1552-4825 |
| URL الوصول: | https://explore.openaire.eu/search/publication?articleId=doi_dedup___::12221e10caf57cd97185d940d8225701 http://europepmc.org/articles/PMC7756853 |
| حقوق: | OPEN |
| رقم الأكسشن: | edsair.doi.dedup.....12221e10caf57cd97185d940d8225701 |
| قاعدة البيانات: | OpenAIRE |
| تدمد: | 15524833 15524825 |
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