How are we measuring health-related quality of life in patients with a Barrett Esophagus? A systematic review on patient-reported outcome measurements
| العنوان: | How are we measuring health-related quality of life in patients with a Barrett Esophagus? A systematic review on patient-reported outcome measurements |
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| المؤلفون: | Mirjam C. M. van der Ende-van Loon, E. J. Schoon, Wouter L. Curvers, Pythia T. Nieuwkerk, A. Stoker |
| المصدر: | Quality of Life Research. 31:1639-1656 |
| بيانات النشر: | Springer Science and Business Media LLC, 2021. |
| سنة النشر: | 2021 |
| مصطلحات موضوعية: | medicine.medical_specialty, SYMPTOMS, Health Personnel, media_common.quotation_subject, GASTROESOPHAGEAL-REFLUX DISEASE, Prom, THERAPY, PROMIS, ENDOSCOPIC SURVEILLANCE, Barrett Esophagus, Quality of life, Neoplasms, medicine, Humans, Patient Reported Outcome Measures, Esophagus, PROM, media_common, RISK, business.industry, MORTALITY, Public health, Public Health, Environmental and Occupational Health, ADENOCARCINOMA, CANCER, humanities, medicine.anatomical_structure, Patient-reported outcome measures, Family medicine, Quality of Life, Anxiety, Patient-reported outcome, medicine.symptom, Worry, BURDEN, business, Qualitative research |
| الوصف: | Purpose Barrett esophagus (BE) is associated with a significant decrease of health-related quality of life (HRQoL). Too often, patient-reported outcome measures (PROMs) are applied without considering what they measure and for which purposes they are suitable. With this systematic review, we provide researchers and physicians with an overview of all the instruments previously used for measuring HRQoL in BE patients and which PROMs are most appropriate from the patient’s perspective. Methods A comprehensive search was performed to identify all PROMs used for measuring HRQoL in BE patients, to identify factors influencing HRQoL according to BE patients, and to evaluate each PROM from a patients’ perspective. Results Among the 27 studies, a total of 32 different HRQoL instruments were identified. None of these instruments were designed or validated for use in BE patients. Four qualitative studies were identified exploring factors influencing HRQoL in the perceptions of BE patients. These factors included fear of cancer, anxiety, trust in physician, sense of control, uncertainty, worry, burden of endoscopy, knowledge and understanding, gastrointestinal symptoms, sleeping difficulties, diet and lifestyle, use of medication, and support of family and friends. Conclusion None of the quantitative studies measuring HRQoL in BE patients sufficiently reflected the perceptions of HRQoL in BE patients. Only gastrointestinal symptoms and anxiety were addressed in the majority of the studies. For the selection of PROMs, we encourage physicians and researchers measuring HRQoL to choose their PROMs from a patient perspective and not strictly based on health professionals’ definitions of what is relevant. |
| تدمد: | 1573-2649 0962-9343 |
| URL الوصول: | https://explore.openaire.eu/search/publication?articleId=doi_dedup___::1a71bd53a3a8c8aa845c339368dc2a42 https://doi.org/10.1007/s11136-021-03009-7 |
| حقوق: | OPEN |
| رقم الأكسشن: | edsair.doi.dedup.....1a71bd53a3a8c8aa845c339368dc2a42 |
| قاعدة البيانات: | OpenAIRE |
Find this article in full text from Springer Verlag. | تدمد: | 15732649 09629343 |
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