COVID-19: experiences of lockdown and support needs in children and young adults with kidney conditions
| العنوان: | COVID-19: experiences of lockdown and support needs in children and young adults with kidney conditions |
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| المؤلفون: | Kay Tyerman, Yincent Tse, David Culliford, Anne-Sophie Darlington, Sofia Chantziara, Alejandra Recio-Saucedo, Tanya Pankhurst, Dean Wallace, Arvind Nagra |
| المصدر: | Pediatric Nephrology (Berlin, Germany) |
| بيانات النشر: | Springer Science and Business Media LLC, 2021. |
| سنة النشر: | 2021 |
| مصطلحات موضوعية: | Quality of life, Adult, Male, Parents, Community cohesion, medicine.medical_specialty, Adolescent, 030232 urology & nephrology, Coding (therapy), Subgroup analysis, Letter to the Editors, Health Services Accessibility, Young Adult, 03 medical and health sciences, Age, 0302 clinical medicine, Surveys and Questionnaires, Humans, Medicine, 030212 general & internal medicine, Renal Insufficiency, Chronic, Young adult, Child, Pandemics, SARS-CoV-2, business.industry, Social distance, Age Factors, Infant, Newborn, COVID-19, Infant, Paediatrics, Fear, Middle Aged, Telemedicine, United Kingdom, Nephrology, Child, Preschool, Family medicine, Communicable Disease Control, Pediatrics, Perinatology and Child Health, Original Article, Female, Thematic analysis, business, Decision Making, Shared, Stress, Psychological, Career development |
| الوصف: | Background During the initial COVID-19 pandemic, young United Kingdom (UK) kidney patients underwent lockdown and those with increased vulnerabilities socially isolated or ‘shielded’ at home. The experiences, information needs, decision-making and support needs of children and young adult (CYA) patients or their parents during this period is not well known. Methods A UK-wide online survey co-produced with patients was conducted in May 2020 amongst CYA aged 12–30, or parents of children aged < 18 years with any long-term kidney condition. Participants answered qualitative open text alongside quantitative closed questions. Thematic content analysis using a three-stage coding process was conducted. Results One-hundred and eighteen CYA (median age 21) and 197 parents of children (median age 10) responded. Predominant concerns from CYA were heightened vigilance about viral (68%) and kidney symptoms (77%) and detrimental impact on education or work opportunities (70%). Parents feared the virus more than CYA (71% vs. 40%), and had concerns that their child would catch the virus from them (64%) and would have an adverse impact on other children at home (65%). CYA thematic analysis revealed strong belief of becoming seriously ill if they contracted COVID-19; lost educational opportunities, socialisation and career development; and frustration with the public for not following social distancing rules. Positive outcomes included improved family relationships and community cohesion. Only a minority (14–21% CYA and 20–31% parents, merged questions) desired more support. Subgroup analysis identified greater negative psychological impact in the shielded group. Conclusions This survey demonstrates substantial concern and need for accurate tailored advice for CYA based on individualised risks to improve shared decision making. Graphical abstract |
| وصف الملف: | text |
| تدمد: | 1432-198X 0931-041X |
| URL الوصول: | https://explore.openaire.eu/search/publication?articleId=doi_dedup___::239f3e4339cffe987c9dc53bc7db9265 https://doi.org/10.1007/s00467-021-05041-8 |
| حقوق: | OPEN |
| رقم الأكسشن: | edsair.doi.dedup.....239f3e4339cffe987c9dc53bc7db9265 |
| قاعدة البيانات: | OpenAIRE |
Find this article in full text from Springer Verlag. | تدمد: | 1432198X 0931041X |
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