Dying at home in rural residential aged care: A mixed-methods study in the Snowy Monaro region, Australia

التفاصيل البيبلوغرافية
العنوان: Dying at home in rural residential aged care: A mixed-methods study in the Snowy Monaro region, Australia
المؤلفون: Robert B. Wiles, Roderick D. MacLeod, Christine Phillips, Suzanne Rainsford, Nicholas Glasgow
المصدر: Healthsocial care in the community.
سنة النشر: 2018
مصطلحات موضوعية: medicine.medical_specialty, Palliative care, Sociology and Political Science, Rural community, business.industry, Family caregivers, Health Policy, Public Health, Environmental and Occupational Health, 03 medical and health sciences, 0302 clinical medicine, Outcome variable, 030502 gerontology, Place of death, Respite care, Family medicine, Life expectancy, Medicine, 030212 general & internal medicine, Aged care, 0305 other medical science, business, Social Sciences (miscellaneous)
الوصف: Residential aged care (RAC) is a significant provider of end-of-life care for people aged 65 years and older. Rural residents perceive themselves as different to their urban counterparts. Most studies describing place of death (PoD) in RAC are quantitative and reflect an urban voice. Using a mixed-methods design, this paper examines the PoD of 80 RAC residents (15 short-stay residents who died in RAC during respite or during an attempted step-down transition from hospital to home, and 65 permanent residents), within the rural Snowy Monaro region, Australia, who died between 1 February 2015 and 31 May 2016. Death data were collected from local funeral directors, RAC facilities, one multi-purpose heath service and obituary notices in the local media. The outcome variable was PoD: RAC, local hospital or out-of-region tertiary hospital. For the permanent RAC residents, the outcome of interest was dying in RAC or dying in hospital. Cross tabulations by PoD and key demographic data were performed. Pearson Chi squared tests and exact p-values were used to determine if any of the independent variables were associated with PoD. Using an ethnographic approach, data were collected from 12 face-to-face, open-ended interviews with four RAC residents, with a life expectancy of ≤6 months, and six family caregivers. Interviews were audio-recorded, transcribed and analysed thematically. Fifty-one (78.5%) of the permanent residents died in RAC; 21.5% died in hospital. Home was the initial preferred POD for most interviewed participants; most eventually accepted the transfer to RAC. Long-term residents considered RAC to be their "home"-a familiar place, and an important part of their rural community. The participants did not consider a transfer to hospital to be necessary for end-of-life care. Further work is required to explore further the perspectives of rural RAC residents and their families, and if transfers to hospital are avoidable.
تدمد: 1365-2524
URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::2d076115c50baf4d17eef2d6444ec1f2
https://pubmed.ncbi.nlm.nih.gov/29766598
حقوق: CLOSED
رقم الأكسشن: edsair.doi.dedup.....2d076115c50baf4d17eef2d6444ec1f2
قاعدة البيانات: OpenAIRE