Comprehension and Decision-Making Capacity Questionnaire About Palliative Care and Advance Care Planning: A Delphi Study
| العنوان: | Comprehension and Decision-Making Capacity Questionnaire About Palliative Care and Advance Care Planning: A Delphi Study |
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| المؤلفون: | Fulvio Bergamo Trevizan, Carlos Eduardo Paiva, Miguel Julião, Talita Caroline de Oliveira Valentino, Michelle Uchida Miwa, Mirella Mingardi, Daniel D’Almeida Preto, Juliana Beraldo Ciorlia, Maria Salete de Angelis Nascimento, Maria Júlia Kovács, Luciana Dadalto, Livia Costa de Oliveira, Karla Santos da Costa Rosa, Bianca Sakamoto Ribeiro Paiva |
| المصدر: | Journal of Palliative Care. 38:41-51 |
| بيانات النشر: | SAGE Publications, 2022. |
| سنة النشر: | 2022 |
| مصطلحات موضوعية: | Advance Care Planning, Delphi Technique, Surveys and Questionnaires, Palliative Care, Humans, Female, Breast Neoplasms, General Medicine, Comprehension |
| الوصف: | Objective(s): To develop a questionnaire that assesses the level of comprehension and decision-making capacity of patients with breast cancer about palliative care and advance care planning. Methods: Questionnaire items were based on the scientific literature. Delphi Consensus, a three-round survey with experts (n = 14), evaluated the relevance, clarity, and redundancies of the items. A pretest with breast cancer patients (n = 15) evaluated whether they comprehended each item and identified doubts or discomforts. Results: The initial questionnaire was composed of 38 items. After the Delphi, 18 items were restructured, six were added, and 16 were removed. In the pretest phase, all items with the survey header, guidelines, and Likert model were evaluated. All items accomplished ≥80% cut-off score and were kept as in the original version. The final version of the questionnaire have 28 itens and five domains: determination, responsibility, independence, self-knowledge, and knowledge of reality. Conclusions: This study represents the first step in the development of a questionnaire that may be used in oncology clinical practice. The main findings revealed that Delphi and pretesting increased the quality of the questionnaire, making it compelling to assess breast cancer patients’ comprehension and decision-making capacity about PC and ACP. |
| تدمد: | 2369-5293 0825-8597 |
| URL الوصول: | https://explore.openaire.eu/search/publication?articleId=doi_dedup___::547fef87c6302adbb30c88bf90cb21dc https://doi.org/10.1177/08258597221128676 |
| حقوق: | CLOSED |
| رقم الأكسشن: | edsair.doi.dedup.....547fef87c6302adbb30c88bf90cb21dc |
| قاعدة البيانات: | OpenAIRE |
| تدمد: | 23695293 08258597 |
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