Epidemiology conduction of paediatric rheumatic diseases based on the registry database of the Pediatric Rheumatology Association of Japan

التفاصيل البيبلوغرافية
العنوان: Epidemiology conduction of paediatric rheumatic diseases based on the registry database of the Pediatric Rheumatology Association of Japan
المؤلفون: Hidehiko Narazaki, Shinji Akioka, Yuko Akutsu, Mariko Araki, Mikiya Fujieda, Daisuke Fukuhara, Ryoki Hara, Kunio Hashimoto, Seira Hattori, Ren Hayashibe, Tomoyuki Imagawa, Yuzaburo Inoue, Hiroyuki Ishida, Shuici Ito, Yasuhiko Itoh, Tomohiro Kawabe, Toshiyuki Kitoh, Ichiro Kobayashi, Tadashi Matsubayashi, Takako Miyamae, Mao Mizuta, Masaaki Mori, Ayako Murase, Yasuo Nakagishi, Koji Nagatani, Naoko Nakano, Toyoki Nishimura, Tomo Nozawa, Nami Okamoto, Yuka Okura, Hiromi Sawada, Emi Sawanobori, Yuko Sugita, Yujiro Tanabe, Minako Tomiita, Ken-ichi Yamaguchi, Ryuhei Yasuoka, Koji Yokoyama
المصدر: Modern Rheumatology.
بيانات النشر: Oxford University Press (OUP), 2022.
سنة النشر: 2022
مصطلحات موضوعية: Rheumatology
الوصف: Objectives Although epidemiological surveys of paediatric rheumatic diseases in Japan have been conducted, they were single surveys with no continuity. This is the first report of the Pediatric Rheumatology Association of Japan registry database, which was established to continuously collect data for paediatric rheumatic diseases. Methods Pediatric Rheumatology International Collaborate Unit Registry version 2 (PRICUREv2) is a registry database established by the Pediatric Rheumatology Association of Japan. The registry data were analysed for the age of onset, time to diagnosis, sex differences, seasonality, and other factors. Results Our data showed the same trend regarding rates of paediatric rheumatic diseases reported in Japan and other countries. The age of onset was lower in juvenile idiopathic arthritis (JIA) and juvenile dermatomyositis and higher in systemic lupus erythematosus and Sjögren’s syndrome. The time to diagnosis was relatively short in JIA and systemic lupus erythematosus but longer in juvenile dermatomyositis and Sjögren’s syndrome. Rheumatoid factor-positive polyarticular JIA showed a seasonality cluster with regard to onset. Conclusion PRICUREv2 aided the retrieval and evaluation of current epidemiological information on patients with paediatric rheumatic diseases. It is expected that the data collection will be continued and will be useful for expanding research in Japan.
تدمد: 1439-7609
1439-7595
URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::5e30dc47c9bc7c9d3a7b6dcd7f84601a
https://doi.org/10.1093/mr/roac112
حقوق: CLOSED
رقم الأكسشن: edsair.doi.dedup.....5e30dc47c9bc7c9d3a7b6dcd7f84601a
قاعدة البيانات: OpenAIRE