Patient Stories Can Make a Difference in Patient-Centered Research Design
| العنوان: | Patient Stories Can Make a Difference in Patient-Centered Research Design |
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| المؤلفون: | Yolanda Vaughn, Tiffany L Israel, Yvonne Joosten, Jabari S Ichimura, Kenneth A. Wallston, Laurie L. Novak, Sarah C. Stallings, Christopher L Simpson, Sheba George, Neely Williams, Consuelo H. Wilkins |
| المصدر: | Journal of Patient Experience, Vol 7 (2020) Journal of Patient Experience |
| بيانات النشر: | SAGE Publishing, 2020. |
| سنة النشر: | 2020 |
| مصطلحات موضوعية: | Research design, Medical education, lcsh:R5-920, Health (social science), Community engagement, Leadership and Management, 030503 health policy & services, Health Policy, community engagement, research design, 03 medical and health sciences, 0302 clinical medicine, storytelling, patient-centeredness, In patient, 030212 general & internal medicine, 0305 other medical science, Psychology, lcsh:Medicine (General), Research Articles, Patient centered, Storytelling |
| الوصف: | Amid increasing interest in improving the patient-centeredness of research, new forms of engagement are emerging that enable researchers to get input from community members on research goals, methods, and implementation. This input often includes stories, which are useful for understanding lived experiences of illness and encounters with health care organizations, and for locating these experiences within larger meta-narratives of specific communities. We analyzed the stories in transcripts of 13 Community Engagement Studios and identified 4 major functions that the stories served in the sessions. Major functions included: (1) establishing mutual understanding, (2) adding expansion and depth, (3) characterizing abstract concepts, and (4) providing context for experience, with the latter being the most frequent. We assert that stories can serve to better communicate the complex contexts of patient experiences, helping to align research priorities and research design with community interests, leading to more patient-centered innovations in clinical practice. |
| اللغة: | English |
| تدمد: | 2374-3743 2374-3735 |
| URL الوصول: | https://explore.openaire.eu/search/publication?articleId=doi_dedup___::76312114dc850fcf2213a09039390ae5 https://doaj.org/article/d5fe14dca0184e9ebc621c4997b8e0ee |
| حقوق: | OPEN |
| رقم الأكسشن: | edsair.doi.dedup.....76312114dc850fcf2213a09039390ae5 |
| قاعدة البيانات: | OpenAIRE |
| تدمد: | 23743743 23743735 |
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