Lived Experiences of Siblings of Individuals with Autism Spectrum Disorder in India: An Interpretative Phenomenological Analysis
| العنوان: | Lived Experiences of Siblings of Individuals with Autism Spectrum Disorder in India: An Interpretative Phenomenological Analysis |
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| المؤلفون: | Poornima Viswanathan, M. Thomas Kishore, Shekhar P. Seshadri |
| المصدر: | Indian Journal of Psychological Medicine, Vol 44 (2022) |
| بيانات النشر: | SAGE Publications, 2021. |
| سنة النشر: | 2021 |
| مصطلحات موضوعية: | Psychiatry, 030506 rehabilitation, Interpretative phenomenological analysis, Lived experience, 05 social sciences, RC435-571, medicine.disease, Developmental psychology, 03 medical and health sciences, Clinical Psychology, Psychiatry and Mental health, Autism spectrum disorder, mental disorders, medicine, 0501 psychology and cognitive sciences, 0305 other medical science, Psychology, 050104 developmental & child psychology |
| الوصف: | Background: Autism spectrum disorder (ASD) can impact the individual and their families. The impact on siblings is unique because they evolve from being another child in the family to a future adult who can be a potential resource to the family in supporting a member with ASD. Since the quality of care and support can be affected by the lived experiences of the carer and there are not many studies on siblings, this study examined the lived experiences of siblings of individuals with ASD. Methods: Fourteen siblings of individuals with ASD, aged 15–36 years, were recruited from a tertiary hospital, schools, and private institutes. A semistructured interview schedule was used to explore the lived experiences. Interpretative phenomenological analysis (IPA) was used to identify the themes. Results: The themes based on IPA indicated that the siblings have very basic concerns like understanding the condition and complex issues such as coping, preparing for current and future roles, personal needs and expectations, need for a support system, and positive aspects of the sibling relationship. Nonetheless, the siblings minimized reporting their difficulties and focused more on the needs of the sibling with ASD. Conclusion: Siblings have diverse lived experiences, with a small element of positive experiences. Appropriate supports are needed to address the complexities of the lived experiences. |
| تدمد: | 0975-1564 0253-7176 |
| URL الوصول: | https://explore.openaire.eu/search/publication?articleId=doi_dedup___::812a113c82f2ed2250d15b64a9bd2e2a https://doi.org/10.1177/02537176211029111 |
| حقوق: | OPEN |
| رقم الأكسشن: | edsair.doi.dedup.....812a113c82f2ed2250d15b64a9bd2e2a |
| قاعدة البيانات: | OpenAIRE |
| تدمد: | 09751564 02537176 |
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