Parent reports of health-related quality of life and heart failure severity score independently predict outcome in children with dilated cardiomyopathy
| العنوان: | Parent reports of health-related quality of life and heart failure severity score independently predict outcome in children with dilated cardiomyopathy |
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| المؤلفون: | Lukas A. J. Rammeloo, Marijke van der Meulen, Susanna L. den Boer, Michiel Dalinghaus, Gabriëlle G. van Iperen, Ad P. C. M. Backx, Sara J. Baart, Gideon J. du Marchie Sarvaas, Willem A. Helbing, Arend D. J. ten Harkel, Elisabeth M. W. J. Utens, Ronald B. Tanke |
| المساهمون: | Faculteit Medische Wetenschappen/UMCG, Pediatric surgery, ACS - Heart failure & arrhythmias, Pediatrics, Child and Adolescent Psychiatry / Psychology, Paediatric Cardiology |
| المصدر: | Cardiology in the young, 27(6), 1194-1202. Cambridge University Press Cardiology in the Young, 27, 6, pp. 1194-1202 Cardiology in the Young, 27(6), 1194-1202. Cambridge University Press Den Boer, S L, Baart, S J, Van Der Meulen, M H, Van Iperen, G G, Backx, A P, Harkel, A D T, Rammeloo, L A, Du Marchie Sarvaas, G J, Tanke, R B, Helbing, W A, Utens, E M & Dalinghaus, M 2017, ' Parent reports of health-related quality of life and heart failure severity score independently predict outcome in children with dilated cardiomyopathy ', Cardiology in the Young, vol. 27, no. 6, pp. 1194-1202 . https://doi.org/10.1017/S1047951116002833 Cardiology in the Young, 27, 1194-1202 Cardiology in the Young, 27(6), 1194-1202 |
| سنة النشر: | 2017 |
| مصطلحات موضوعية: | Male, Parents, Pediatrics, Health Status, medicine.medical_treatment, CHILDHOOD, 030204 cardiovascular system & hematology, Severity of Illness Index, DISEASE, 0302 clinical medicine, Quality of life, Interquartile range, Surveys and Questionnaires, Prospective Studies, Registries, 030212 general & internal medicine, Child, POPULATION, INDEX, Netherlands, CARDIOLOGY, Heart transplantation, Incidence, Hazard ratio, Dilated cardiomyopathy, General Medicine, New York University Pediatric Heart Failure Index, Child, Preschool, RELIABILITY, Disease Progression, outcome, SURVIVAL, Female, Cardiology and Cardiovascular Medicine, Cardiomyopathy, Dilated, medicine.medical_specialty, Adolescent, QUESTIONNAIRE, Risk Assessment, 03 medical and health sciences, children, medicine, Humans, VALIDITY, Heart Failure, TRANSPLANTATION, Proportional hazards model, business.industry, Other Research Radboud Institute for Health Sciences [Radboudumc 0], Infant, medicine.disease, dilated cardiomyopathy, Transplantation, Cross-Sectional Studies, Heart failure, Pediatrics, Perinatology and Child Health, business, Follow-Up Studies |
| الوصف: | BackgroundDilated cardiomyopathy in children causes heart failure and has a poor prognosis. Health-related quality of life in this patient group is unknown. Moreover, results may provide detailed information of parents’ sense of their child’s functioning. We hypothesised that health-related quality of life, as rated by parents, and the paediatric heart failure score, as assessed by physicians, have both predictive value on outcome.Methods and resultsIn this prospective study, health-related quality of life was assessed by parent reports: the Infant Toddler Quality of Life questionnaire (0–4 years) or Child Health Questionnaire-Parent Form 50 (4–18 years) at 3–6-month intervals. We included 90 children (median age 3.8 years, interquartile range (IQR) 0.9–12.3) whose parents completed 515 questionnaires. At the same visit, physicians completed the New York University Pediatric Heart Failure Index. Compared with Dutch normative data, quality of life was severely impaired at diagnosis (0–4 years: 7/10 subscales and 4–18 years: 8/11 subscales) and ⩾1 year after diagnosis (3/10 and 6/11 subscales). Older children were more impaired (pConclusionPhysical impairment rated by parents and heart failure severity assessed by physicians independently predicted the risk of death or heart transplantation in children with dilated cardiomyopathy. |
| وصف الملف: | application/pdf |
| اللغة: | English |
| تدمد: | 1047-9511 |
| URL الوصول: | https://explore.openaire.eu/search/publication?articleId=doi_dedup___::8f897833f0d8f674c7ce80512d04b632 https://doi.org/10.1017/s1047951116002833 |
| حقوق: | OPEN |
| رقم الأكسشن: | edsair.doi.dedup.....8f897833f0d8f674c7ce80512d04b632 |
| قاعدة البيانات: | OpenAIRE |
| تدمد: | 10479511 |
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