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Trained facilitators' experiences with structured advance care planning conversations in oncology

التفاصيل البيبلوغرافية
العنوان: Trained facilitators' experiences with structured advance care planning conversations in oncology
المؤلفون: Zwakman, M., Pollock, K., Bulli, F., Caswell, G., Cerv, B., van Delden, J. J. M., Deliens, L., van der Heide, A., Jabbarian, L. J., Koba-Ceh, H., Lunder, U., Miccinesi, G., Arnfeldt, C. A. Moller, Seymour, J., Toccafondi, A., Verkissen, M. N., Kars, M. C., Korfage, I. J., Rietjens, J. A. C., Polinder, S., Billekens, P. F. A., Eecloo, K., Faes, K., Wilcock, A., Bramley, L., Payne, S., Preston, N., Dunleavy, L., Sowerby, E., Ingravallo, F., Carreras, G., Gorini, G., Simonic, A., Mimic, A., Ceh, H. Kodba, Ozbic, P., Grønvold, M., Johnsen, A. Thit
المساهمون: Family Medicine and Chronic Care, End-of-life Care Research Group, Faculty of Medicine and Pharmacy, Public Health
المصدر: BMC Cancer, Vol 19, Iss 1, Pp 1-13 (2019)
BMC cancer, vol. 19, pp. 1-13, 2019.
BMC CANCER
BMC Cancer, 19(1). BioMed Central
BMC Cancer
BMC Cancer, 19(1):1026. BioMed Central Ltd.
Zwakman, M, Pollock, K, Bulli, F, Caswell, G, Cerv, B, van Delden, J J M, Deliens, L, van der Heide, A, Jabbarian, L J, Koba-Ceh, H, Lunder, U, Miccinesi, G, Arnfeldt, C A M, Seymour, J, Toccafondi, A, Verkissen, M N, Kars, M C, Korfage, I J, Rietjens, J A C, Polinder, S, Billekens, P F A, Eecloo, K, Faes, K, Wilcock, A, Bramley, L, Payne, S, Preston, N, Dunleavy, L, Sowerby, E, Ingravallo, F, Carreras, G, Gorini, G, Simonic, A, Mimic, A, Ceh, H K, Ozbic, P, Grønvold, M & Johnsen, A T 2019, ' Trained facilitators' experiences with structured advance care planning conversations in oncology : an international focus group study within the ACTION trial ', B M C Cancer, vol. 19, 1026 . https://doi.org/10.1186/s12885-019-6170-7
بيانات النشر: BioMed Central, 2019.
سنة النشر: 2019
مصطلحات موضوعية: Oncology, Advance care planning, Cancer Research, Lung Neoplasms, Experiences, pomočnik pri načrtovanju oskrbe, Emotions, ACTION study, respecting choices, Medical Oncology, GOALS, patients, 0302 clinical medicine, experience, Cultural diversity, Adaptation, Psychological, Health care, rak, Medicine and Health Sciences, facilitator, 030212 general & internal medicine, media_common, Cancer, Facilitator, Communication, Professional-Patient Relations, Focus Groups, bolniki, GENERAL-PRACTITIONERS, lcsh:Neoplasms. Tumors. Oncology. Including cancer and carcinogens, 3. Good health, Europe, 030220 oncology & carcinogenesis, raziskava ACTION, spoštovanje odločitev, Colorectal Neoplasms, Psychology, Life Sciences & Biomedicine, Research Article, medicine.medical_specialty, Health Personnel, media_common.quotation_subject, education, Self-concept, lcsh:RC254-282, 03 medical and health sciences, PEOPLE, Internal medicine, Respecting choices, medicine, Genetics, Journal Article, Humans, udc:614.2, cancer, Conversation, Science & Technology, izkušnje, BARRIERS, business.industry, Focus group, Self Concept, business, Qualitative research
الوصف: Background In oncology, Health Care Professionals often experience conducting Advance Care Planning (ACP) conversations as difficult and are hesitant to start them. A structured approach could help to overcome this. In the ACTION trial, a Phase III multi-center cluster-randomized clinical trial in six European countries (Belgium, Denmark, Italy, the Netherlands, Slovenia, United Kingdom), patients with advanced lung or colorectal cancer are invited to have one or two structured ACP conversations with a trained facilitator. It is unclear how trained facilitators experience conducting structured ACP conversations. This study aims to understand how facilitators experience delivering the ACTION Respecting Choices (RC) ACP conversation. Methods A qualitative study involving focus groups with RC facilitators. Focus group interviews were recorded, transcribed, anonymized, translated into English, and thematically analysed, supported by NVivo 11. The international research team was involved in data analysis from initial coding and discussion towards final themes. Results Seven focus groups were conducted, involving 28 of in total 39 trained facilitators, with different professional backgrounds from all participating countries. Alongside some cultural differences, six themes were identified. These reflect that most facilitators welcomed the opportunity to participate in the ACTION trial, seeing it as a means of learning new skills in an important area. The RC script was seen as supportive to ask questions, including those perceived as difficult to ask, but was also experienced as a barrier to a spontaneous conversation. Facilitators noticed that most patients were positive about their ACTION RC ACP conversation, which had prompted them to become aware of their wishes and to share these with others. The facilitators observed that it took patients substantial effort to have these conversations. In response, facilitators took responsibility for enabling patients to experience a conversation from which they could benefit. Facilitators emphasized the need for training, support and advanced communication skills to be able to work with the script. Conclusions Facilitators experienced benefits and challenges in conducting scripted ACP conversations. They mentioned the importance of being skilled and experienced in carrying out ACP conversations in order to be able to explore the patients’ preferences while staying attuned to patients’ needs. Trial registration International Standard Randomised Controlled Trial Number registry 63110516 (ISRCTN63110516) per 10/3/2014.
وصف الملف: application/pdf; text/url; image/pdf; Electronic
اللغة: English
تدمد: 1471-2407
URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::90088ef871a8311cd9b58ee37fe7ada1
https://hdl.handle.net/20.500.14017/eea61caf-25ee-4819-9b4f-411a7adc0f92
حقوق: OPEN
رقم الأكسشن: edsair.doi.dedup.....90088ef871a8311cd9b58ee37fe7ada1
قاعدة البيانات: OpenAIRE
الوصف
تدمد:14712407