Face and Content Validity, Acceptability, and Feasibility of the Adapted Version of the Children's Palliative Outcome Scale: A Qualitative Pilot Study
| العنوان: | Face and Content Validity, Acceptability, and Feasibility of the Adapted Version of the Children's Palliative Outcome Scale: A Qualitative Pilot Study |
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| المؤلفون: | Julia Downing, Eve Namisango, Murielle Mevisse, Dominique Bellis, Jean-Marie Degryse, Christine Fonteyne, Marie Schruse, Isabelle Aujoulat, Richard Harding, Sabine Boonen, Marie Friedel, Maud Jaspard, Bénédicte Brichard, Corinne Tonon, Brigitte de Terwangne |
| المساهمون: | UCL - SSS/IRSS - Institut de recherche santé et société |
| المصدر: | Journal of Palliative Medicine, p. 8p. (2021) |
| بيانات النشر: | Mary Ann Liebert Inc, 2021. |
| سنة النشر: | 2021 |
| مصطلحات موضوعية: | Semi-structured interview, Palliative care, Adolescent, Psychometrics, Pilot Projects, Quality of life, Nursing, Respite care, Surveys and Questionnaires, Health care, Content validity, Humans, Medicine, Child, General Nursing, business.industry, Palliative Care, French, General Medicine, language.human_language, Anesthesiology and Pain Medicine, Scale (social sciences), Quality of Life, language, Feasibility Studies, business |
| الوصف: | Objective: To assess the face and content validity, acceptability and feasibility of a French version of the Children’s Palliative Outcome Scale (CPOS). Background: Instruments in French used to measure outcomes in pediatric palliative care are lacking. Methods: After forward-backward translation of the 12-item English CPOS to French, we conducted a qualitative pilot study. During semi structured interviews among children and parents, we used the CPOS, the Schedule for the Evaluation of Individual Quality of Life interview guide (SEIQoL) and the Quality of Life in Life-threatening Illness-Family Carer questionnaire (QOLLTI-F), in addition to three expert meetings with PLTs. Results: Fourteen children and adolescents (8-18 years) with life-limiting or life-threatening conditions cared for at home, in hospital or in respite care services, 19 parents, and 9 members of 4 pediatric liaison teams (PLTs) providing palliative care in a Belgian francophone region were included in the study. No families refused to participate. All children with verbal capacities chose to be interviewed in the presence of their parents and a PLT member. The children valued being given the opportunity to share their experiences. New QOL dimensions pertaining to social, emotional, and administrative health-care related issues were added to the original version of the 12-item CPOS, leading to a 22-item CPOS-2. Discussion: The CPOS-2 was perceived as relevant and easy to use by the principal stakeholders. Our study paves the way for a large-scale field study assessing its psychometric characteristics and its implementation in routine clinical care. |
| تدمد: | 1557-7740 1096-6218 |
| URL الوصول: | https://explore.openaire.eu/search/publication?articleId=doi_dedup___::9bb6e47c5b3d5c6ab63c1655313d6576 https://doi.org/10.1089/jpm.2019.0646 |
| حقوق: | OPEN |
| رقم الأكسشن: | edsair.doi.dedup.....9bb6e47c5b3d5c6ab63c1655313d6576 |
| قاعدة البيانات: | OpenAIRE |
| تدمد: | 15577740 10966218 |
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