Understanding the patient’s lived experience of neovascular age-related macular degeneration: a qualitative study
| العنوان: | Understanding the patient’s lived experience of neovascular age-related macular degeneration: a qualitative study |
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| المؤلفون: | Stewart Lake, Christine McCloud |
| المصدر: | Eye. 29:1561-1569 |
| بيانات النشر: | Springer Science and Business Media LLC, 2015. |
| سنة النشر: | 2015 |
| مصطلحات موضوعية: | Male, Vascular Endothelial Growth Factor A, Gerontology, genetic structures, Bevacizumab, Recombinant Fusion Proteins, media_common.quotation_subject, Angiogenesis Inhibitors, Ophthalmic pathology, Neuro-ophthalmology, Optimism, Quality of life (healthcare), Ranibizumab, Sickness Impact Profile, Humans, Medicine, Qualitative Research, Aged, media_common, Aged, 80 and over, business.industry, Macular degeneration, medicine.disease, eye diseases, Ophthalmology, Receptors, Vascular Endothelial Growth Factor, Intravitreal Injections, Clinical Study, Quality of Life, Wet Macular Degeneration, Optometry, Female, business, Tomography, Optical Coherence, medicine.drug, Qualitative research |
| الوصف: | In industrialised populations age-related macular degeneration (ARMD) is the leading cause of visual disability of the elderly. Successful new treatment with anti-endothelial growth factors for neovascular-classified ARMD has led to a divergence in treatment and experiences of people ARMD. This study aimed to understand the participant’s experience of neovascular ARMD, including ongoing treatment with anti-vascular endothelial growth factor. Twenty-five participants from one clinical site were qualitatively interviewed to elicit their experiences of treatment for neovascular ARMD. Two major themes were identified. A life negotiated by neovascular ARMD captures the participants’ experience of living with the condition and treatment regime for neovascular ARMD. The second major theme: Uncertainty displayed their appraisal of life, treatment and their perceived future. Anxieties concerning the injections, new limitations to lifestyles, and an uncertain future all emerged from the data analysis. However, thankfulness for the treatment, the importance of familiar patterns in treatments and recovery and a guarded optimism also emerged. Knowledge of the experiences, anxieties and concerns of this patient population can be used to inform clinical practice and lead to patient-centred care. |
| تدمد: | 1476-5454 0950-222X |
| URL الوصول: | https://explore.openaire.eu/search/publication?articleId=doi_dedup___::bb020a0d75a737adf2921b0ff34b750e https://doi.org/10.1038/eye.2015.167 |
| حقوق: | OPEN |
| رقم الأكسشن: | edsair.doi.dedup.....bb020a0d75a737adf2921b0ff34b750e |
| قاعدة البيانات: | OpenAIRE |
Find this article in full text from Springer Verlag. | تدمد: | 14765454 0950222X |
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