Hispanic Dementia Family Caregiver’s Knowledge, Experience, and Awareness of Self-Management: Foundations for Health Information Technology Interventions
| العنوان: | Hispanic Dementia Family Caregiver’s Knowledge, Experience, and Awareness of Self-Management: Foundations for Health Information Technology Interventions |
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| المؤلفون: | José A. Luchsinger, Robert J. Lucero, Joan A. Kearney, Maribel Granja, Suzanne Bakken, Yamnia I Cortes, Niurka Suero-Tejeda, Rosario B. Jaime-Lara |
| المصدر: | Hispanic Health Care International. 17:49-58 |
| بيانات النشر: | SAGE Publications, 2018. |
| سنة النشر: | 2018 |
| مصطلحات موضوعية: | Male, Health Knowledge, Attitudes, Practice, Health information technology, Psychological intervention, 03 medical and health sciences, 0302 clinical medicine, Nursing, Intervention (counseling), medicine, Humans, Dementia, 030212 general & internal medicine, General Nursing, Aged, Family Health, 030505 public health, Self-management, Self-Management, Hispanic or Latino, Middle Aged, medicine.disease, Management information systems, Health promotion, Caregivers, Female, 0305 other medical science, Psychology, Attitude to Health, Medical Informatics, Qualitative research |
| الوصف: | Purpose:As a first step toward developing a web-based Family-Health Information Management System intervention, we explored Hispanic dementia family caregiver’s knowledge, use, and awareness of self-management principles and skills to address health and health care needs for themselves and the person with dementia (PWD).Method:Twenty caregivers and 11 caregiver counselors attended an English or Spanish language focus group ranging from 4 to 6 participants. We conducted a directed content analysis informed by Lorig and Holman’s conceptualization of self-management.Results:A complement of six skills (i.e., problem solving, decision making, resource utilization, patient–provider partnership, action planning, and self-tailoring) to achieve one of three tasks (i.e., emotional, medical, and role management) can fully represent Hispanic dementia family caregivers’ ability to self-manage health and health care needs. While not prominent in our study, caregivers and caregiver counselors pointed out existing and potential uses of personal consumer technology to schedule reminders and search for resources.Discussion:A broad conceptualization of self-management may be necessary to understand Hispanic dementia family caregiver’s ability and needs to address emotional, medical, and role challenges of caregiving.Conclusions:These findings and advances in the use of consumer health information technology support the development of self-management caregiver interventions. |
| تدمد: | 1938-8993 1540-4153 |
| URL الوصول: | https://explore.openaire.eu/search/publication?articleId=doi_dedup___::cd4ec3db380556f66eabde0a90d9b1b0 https://doi.org/10.1177/1540415318819220 |
| حقوق: | CLOSED |
| رقم الأكسشن: | edsair.doi.dedup.....cd4ec3db380556f66eabde0a90d9b1b0 |
| قاعدة البيانات: | OpenAIRE |
| تدمد: | 19388993 15404153 |
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