Genetic counseling of patients with ovarian carcinoma
| العنوان: | Genetic counseling of patients with ovarian carcinoma |
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| المؤلفون: | Carolien M. Kets, M. A. Legdeur, Jan C. Oosterwijk, Ellen M. A. Smets, Christianne A.R. Lok, Marian J.E. Mourits, L. E. van der Kolk, M. R. Buist, Cora M. Aalfs, I. van de Beek, J.A. de Hullu |
| المساهمون: | Damage and Repair in Cancer Development and Cancer Treatment (DARE), Targeted Gynaecologic Oncology (TARGON), Human genetics, Human Genetics, Medical Psychology, APH - Personalized Medicine, APH - Quality of Care, Obstetrics and Gynaecology |
| المصدر: | van de Beek, I, Smets, E M A, Legdeur, M A, de Hullu, J A, Lok, C A R, Buist, M R, Mourits, M J E, Kets, C M, van der Kolk, L E, Oosterwijk, J C & Aalfs, C M 2020, ' Genetic counseling of patients with ovarian carcinoma: acceptance, timing, and psychological wellbeing ', Journal of Community Genetics, vol. 11, no. 2, pp. 183-191 . https://doi.org/10.1007/s12687-019-00427-6 Journal of Community Genetics Journal of Community Genetics, 11, 2, pp. 183-191 Journal of community genetics, 11(2), 183-191. SPRINGER HEIDELBERG Journal of Community Genetics, 11(2), 183-191. Springer Verlag Journal of Community Genetics, 11, 183-191 Journal of community genetics, 11(2), 183-191. Springer Verlag |
| سنة النشر: | 2020 |
| مصطلحات موضوعية: | medicine.medical_specialty, Genetic testing, endocrine system diseases, Epidemiology, media_common.quotation_subject, Genetic counseling, HOSPITAL ANXIETY, Hospital Anxiety and Depression Scale, BREAST, 03 medical and health sciences, 0302 clinical medicine, DISTRESS, medicine, CANCER PATIENTS, Ovarian carcinoma, Genetics (clinical), media_common, RISK, 0303 health sciences, medicine.diagnostic_test, business.industry, 030305 genetics & heredity, Public Health, Environmental and Occupational Health, Questionnaire, WOMEN, GERMLINE MUTATIONS, DEPRESSION, Women's cancers Radboud Institute for Health Sciences [Radboudumc 17], 3. Good health, Distress, FALLOPIAN-TUBE, 030220 oncology & carcinogenesis, Family medicine, BRCA1/2 MUTATION CARRIERS, Original Article, Worry, Psychological wellbeing, business, Psychosocial |
| الوصف: | Contains fulltext : 218565.pdf (Publisher’s version ) (Open Access) The new Dutch guidelines on hereditary and familial ovarian carcinoma recommend genetic testing of all patients with epithelial ovarian cancer (EOC). With this study, we aimed to obtain insight into (1) the acceptance and timing of the offer of genetic counseling in women with EOC, (2) reasons for accepting or declining genetic counseling, and (3) psychological differences between women who did and did not have genetic counseling. A multicenter questionnaire survey was performed in patients with EOC in four Dutch oncology centers. The questionnaire addressed whether, how, and when genetic counseling was offered, women's arguments to accept or decline genetic counseling, and included the Cancer Worry Scale (CWS) and the Hospital Anxiety and Depression Scale (HADS). A total of 67 women completed the questionnaire, of which 43 had genetic counseling. Despite a wide variability in the timing of the offer of genetic counseling, 89% of the women were satisfied with the timing. No significant differences were found between the CWS and HADS scores for the timing of the offer of genetic counseling and whether or not women had genetic counseling. Taking the small sample size into account, the results tentatively suggest that genetic counseling may have limited impact on the psychosocial wellbeing of women with EOC. Therefore, we assume that implementation of the new guidelines offering genetic counseling to all patients with EOC will not cause considerable additional burden to these patients. |
| وصف الملف: | application/pdf |
| اللغة: | English |
| تدمد: | 1868-310X |
| URL الوصول: | https://explore.openaire.eu/search/publication?articleId=doi_dedup___::d41c06cd61f8ef6a8e3458960760585f https://hdl.handle.net/11370/cba29a37-a317-4c15-88ce-435b808fdf42 |
| حقوق: | OPEN |
| رقم الأكسشن: | edsair.doi.dedup.....d41c06cd61f8ef6a8e3458960760585f |
| قاعدة البيانات: | OpenAIRE |
Find this article in full text from Springer Verlag. | تدمد: | 1868310X |
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