How to help researchers in palliative care improve responsiveness to migrants and other underrepresented populations: developing and testing a self-assessment instrument
| العنوان: | How to help researchers in palliative care improve responsiveness to migrants and other underrepresented populations: developing and testing a self-assessment instrument |
|---|---|
| المؤلفون: | Jeanine Suurmond, X. de Voogd, K. L. Strackee, M Torensma, M. G. Oosterveld-Vlug, Bregje D. Onwuteaka-Philipsen, D.L. Willems |
| المساهمون: | Graduate School, APH - Aging & Later Life, APH - Global Health, APH - Health Behaviors & Chronic Diseases, APH - Personalized Medicine, AGEM - Inborn errors of metabolism, APH - Methodology, APH - Quality of Care, General practice, Public and occupational health |
| المصدر: | BMC palliative care, 18(1). BioMed Central BMC Palliative Care, Vol 18, Iss 1, Pp 1-11 (2019) BMC Palliative Care Torensma, M, Onwuteaka-Philipsen, B D, Strackee, K L, Oosterveld-Vlug, M G, De Voogd, X, Willems, D L & Suurmond, J L 2019, ' How to help researchers in palliative care improve responsiveness to migrants and other underrepresented populations : Developing and testing a self-assessment instrument ', BMC Palliative Care, vol. 18, no. 1, 83 . https://doi.org/10.1186/s12904-019-0470-1 BMC Palliative Care, 18(1):83. BioMed Central |
| بيانات النشر: | Springer Science and Business Media LLC, 2019. |
| سنة النشر: | 2019 |
| مصطلحات موضوعية: | Adult, Male, Self-assessment, Self-Assessment, Palliative care, Delphi Technique, lcsh:Special situations and conditions, Delphi method, Migrant patients, Vulnerable Populations, 03 medical and health sciences, 0302 clinical medicine, Surveys and Questionnaires, Health care, Humans, 030212 general & internal medicine, Think aloud protocol, Underrepresented populations, Transients and Migrants, Medical education, business.industry, lcsh:RC952-1245, 030503 health policy & services, Palliative Care, Responsiveness, Usability, General Medicine, Middle Aged, Palliative care research, Self-assessment instrument, Research Personnel, Female, 0305 other medical science, business, Psychology, End-of-life care, Research Article, Diversity (business) |
| الوصف: | Background European migrant populations are aging and will increasingly be in need of palliative and end of life care. However, migrant patients are often underrepresented in palliative care research populations. This poses a number of drawbacks, such as the inability to generalize findings or check the appropriateness of care innovations amongst migrant patients. The aim of this study was to develop a self-assessment instrument to help palliative care researchers assess and find ways to improve their projects’ diversity responsiveness in light of the aging migrant population, and determine whether in addition to older migrants other groups should be included in the instrument’s focus. Methods After developing a concept instrument based on the standards for equity in healthcare for migrants and other vulnerable groups, literature review and interviews with palliative care researchers, we conducted a Delphi study to establish the content of the self-assessment instrument and used think aloud methods in a study involving seven projects for usability testing of the self-assessment instrument. Results A Delphi panel of 22 experts responded to a questionnaire consisting of 3 items concerning the target group and 30 items on diversity responsiveness measures. Using an a priori set consensus rate of 75% to include items in the self-assessment instrument, experts reached consensus on 25 out of 30 items on diversity responsiveness measures. Findings furthermore indicate that underserved groups in palliative care other than migrant patients should be included in the instrument’s focus. This was stressed by both the experts involved in the Delphi study and the researchers engaged in usability testing. Usability testing additionally provided insights into learnability, error-rate, satisfaction and applicability of the instrument, which were used to revise the self-assessment instrument. Conclusions The final self-assessment instrument includes a list of 23 diversity responsiveness measures to be taken at varying stages of a project, and targets all groups at risk of being underrepresented. This instrument can be used in palliative care research to assess diversity responsiveness of projects and instigate action for improvement. |
| تدمد: | 1472-684X |
| URL الوصول: | https://explore.openaire.eu/search/publication?articleId=doi_dedup___::de68c581934cc5ea8b10bcc174bb5e24 https://doi.org/10.1186/s12904-019-0470-1 |
| حقوق: | OPEN |
| رقم الأكسشن: | edsair.doi.dedup.....de68c581934cc5ea8b10bcc174bb5e24 |
| قاعدة البيانات: | OpenAIRE |
Find this article in full text from Springer Verlag. | تدمد: | 1472684X |
|---|