| الوصف: |
While the LC treatment landscape has rapidly evolved in recent years, easing symptom burden and treatment side effects remains a central consideration in disease control.The aim of this study was to assess the relative importance of dimensions of lung cancer (LC) care to patients, and to explore the disease burden including socio-economic aspects not commonly covered in patient reported outcomes instruments.A questionnaire was sent to LC patients and their caregivers to rate the value of a diverse set of quality of life dimensions in care, to evaluate communication between health care professionals (HCPs) and patients, and to explore the economic impact on respondents. The survey included questions on dimensions of care covered by patient -reported outcomes instruments for Quality-of-life evaluation (FACT-L, EQ5D, QLQ-C30 and QLQ-LC13), as well as the ICHOM standard set of patient-centred outcomes for lung cancer. The survey respondents were participants on Carenity's patient community platform living in either France, UK, Germany, Italy, or Spain.The survey included 150 respondents (77% patients, 33% caregivers). "Physical well-being" and "End-of-life care" (median scores of 9.6 [7.7-10] and 9.7 [8.0-10] on a 10-point scale) were rated highest among the different value dimensions assessed. "Physical well-being and functioning" was the dimension most frequently discussed with health care professionals (55%), while only 17% reported discussing "End-of-life care." Among patients younger than 65 years, 43% stopped working after diagnosis. Among respondents that indicated their monthly household income before and after diagnosis, 55% reported a loss of income.Our results showed the relevance of a broad range of aspects of care for the Quality-of-life of LC patients. End-of-life care was the dimension of care rated highest by LC patients irrespective of stage at diagnosis; however, this aspect is least frequently discussed with HCPs. The results also highlight the considerable socio-economic impact of the disease, despite insurance coverage of direct costs. |
