دورية أكاديمية
Lived experience of people with cryptococcal meningitis: A qualitative study
| العنوان: | Lived experience of people with cryptococcal meningitis: A qualitative study |
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| المؤلفون: | Neo A. Legare, Vanessa C. Quan, Nelesh P. Govender, Jane W. Muchiri |
| المصدر: | Southern African Journal of HIV Medicine, Vol 25, Iss 1, Pp e1-e8 (2024) |
| بيانات النشر: | AOSIS, 2024. |
| سنة النشر: | 2024 |
| المجموعة: | LCC:Public aspects of medicine LCC:Infectious and parasitic diseases |
| مصطلحات موضوعية: | hiv-associated cryptococcal meningitis, lived experiences, qualitative study, johannesburg, routine care., Public aspects of medicine, RA1-1270, Infectious and parasitic diseases, RC109-216 |
| الوصف: | Background: The high burden of cryptococcal meningitis (CM) among people living with HIV persists despite widespread access to antiretroviral therapy. Efforts to prevent CM among people living with HIV could be hindered by a limited understanding of their lived experiences of CM and its diagnosis. Objectives: To explore and describe the experiences of people diagnosed with HIV-associated CM in routine care. Two public healthcare facilities in Johannesburg, South Africa. Method: This was a qualitative-methods exploratory, descriptive, phenomenological study. We conducted semi-structured, individual in-depth interviews with nine purposively sampled participants (comprising 5 men and 4 women). Data were analysed using the Moustakas phenomenological approach. Results: Five themes and several sub-themes emerged from the data. Participants described their experiences of being diagnosed, which were marked by intense headaches. Diagnosis of CM led to reduced quality of life, fear of death, and loss of income. Participants described their CM treatment experience and health-seeking behaviour including self-medication, seeking help from traditional healers and general practitioners and utilising public health facilities as a last resort. Barriers to care included negative healthcare workers’ attitudes, unhealthy lifestyles, and poor knowledge of CM. Conclusion: People with HIV-associated CM face negative impacts prior to and after diagnosis. These patients struggled to access timely quality healthcare. Patients starting or restarting antiretroviral therapy, and thus at risk for CM, should receive CM education as part of HIV counselling. |
| نوع الوثيقة: | article |
| وصف الملف: | electronic resource |
| اللغة: | English |
| تدمد: | 1608-9693 2078-6751 |
| Relation: | https://sajhivmed.org.za/index.php/hivmed/article/view/1560; https://doaj.org/toc/1608-9693; https://doaj.org/toc/2078-6751 |
| DOI: | 10.4102/sajhivmed.v25i1.1560 |
| URL الوصول: | https://doaj.org/article/067b4a21cd2543c9ba7e41dd8528c7eb |
| رقم الأكسشن: | edsdoj.067b4a21cd2543c9ba7e41dd8528c7eb |
| قاعدة البيانات: | Directory of Open Access Journals |
Full Text Finder | تدمد: | 16089693 20786751 |
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| DOI: | 10.4102/sajhivmed.v25i1.1560 |