دورية أكاديمية

EpidemIBD: rationale and design of a large-scale epidemiological study of inflammatory bowel disease in Spain

التفاصيل البيبلوغرافية
العنوان: EpidemIBD: rationale and design of a large-scale epidemiological study of inflammatory bowel disease in Spain
المؤلفون: María Chaparro, Manuel Barreiro-de Acosta, José Manuel Benítez, José Luis Cabriada, María José Casanova, Daniel Ceballos, María Esteve, Hipólito Fernández, Daniel Ginard, Fernando Gomollón, Rufo Lorente, Pilar Nos, Sabino Riestra, Montserrat Rivero, Pilar Robledo, Cristina Rodríguez, Beatriz Sicilia, Emilio Torrella, Ana Garre, Esther García-Esquinas, Fernando Rodríguez-Artalejo, Javier P. Gisbert
المصدر: Therapeutic Advances in Gastroenterology, Vol 12 (2019)
بيانات النشر: SAGE Publishing, 2019.
سنة النشر: 2019
المجموعة: LCC:Diseases of the digestive system. Gastroenterology
مصطلحات موضوعية: Diseases of the digestive system. Gastroenterology, RC799-869
الوصف: Background: Inflammatory bowel disease (IBD) is associated with a considerable burden to the patient and society. However, current data on IBD incidence and burden are limited because of the paucity of nationwide epidemiological studies, heterogeneous designs, and a low number of participating centers and sample size. The EpidemIBD study is a large-scale investigation to provide an accurate assessment of the incidence of IBD in Spain, as well as treatment patterns and outcomes. Methods: This multicenter, population-based incidence cohort study included patients aged >18 years with IBD (Crohn’s disease, ulcerative colitis, or unclassified IBD) diagnosed during 2017 in 108 hospitals in Spain, covering 50% of the Spanish population. Each participating patient will attend 10 clinic visits during 5 years of follow up. Demographic data, IBD characteristics and family history, complications, treatments, surgeries, and hospital admissions will be recorded. Results: The EpidemIBD study is the first large-scale nationwide study to investigate the incidence of IBD in Spain. Enrollment is now completed and 3627 patients are currently being followed up. Conclusions: The study has been designed to overcome many of the limitations of previous European studies into IBD incidence by prospectively recruiting a large number of patients from all regions of Spain. In addition to epidemiological information about the burden of IBD, the 5-year follow-up period will also provide information on treatment patterns, and the natural history and financial burden of IBD.
نوع الوثيقة: article
وصف الملف: electronic resource
اللغة: English
تدمد: 1756-2848
17562848
Relation: https://doaj.org/toc/1756-2848
DOI: 10.1177/1756284819847034
URL الوصول: https://doaj.org/article/8d437684dab14c488df3b7a391cd69c6
رقم الأكسشن: edsdoj.8d437684dab14c488df3b7a391cd69c6
قاعدة البيانات: Directory of Open Access Journals
الوصف
تدمد:17562848
DOI:10.1177/1756284819847034