مورد إلكتروني
An interpretive investigation of perinatal HIV transmission : from the population to the personal
| العنوان: | An interpretive investigation of perinatal HIV transmission : from the population to the personal |
|---|---|
| بيانات النشر: | 2005 |
| تفاصيل مُضافة: | Cruickshank, M |
| نوع الوثيقة: | Electronic Resource |
| مستخلص: | While there have been many studies investigating perinatal HIV infection, few have addressed the complexity of the disease. The complexities of HIV infection are compounded for families affected by the disease where several family members are infected. HIV infection is a particularly challenging disease when it affects children and their families as it has the potential to extinguish whole families, placing an infected family under extreme stress. The multigenerational impact of the disease, where several family members are infected and where multiple losses may have occurred as a result, severely affects the family’s ability to cope with existing problems. This dissertation explores the experience of children with perinatal HIV and their carers using an interpretative methodology to synthesise understandings from three separate epidemiological, case study, and interview studies. A review of data from the National Perinatal HIV Register provides information on perinatal transmission of HIV in Australia; a case study demonstrates the medical complexity of the disease from diagnosis to treatment while interviews with parents and children provide insight into the effects of the disease. The study is predicated not only on the research undertaken for this study but also on clinical experience of the researcher. The findings demonstrated that although HIV is a relatively rare disease in Australia transmission continues despite strategies which have demonstrated efficacy in preventing transmission from mother to child. Perinatal transmission continues to occur especially when women give birth before a diagnosis is made. The experiences of parents caring for children with HIV infection, although varied, demonstrate the complex nature of HIV. Once diagnosed with HIV, parents find themselves undertaking a fine balancing act during which they must negotiate to strike the right equilibrium for their family to endure the circumstances as best they can. They are faced with contr |
| مصطلحات الفهرس: | Perinatal HIV transmission., Children with perinatal HIV., National Perinatal HIV Register., Transmission from mother to child continues., Disclosure of HIV status., Emotional turmoil., Cumulative effect of HIV on the child and family., Guidance for care of children and families., Thesis |
| URL: | |
| الإتاحة: | Open access content. Open access content |
| ملاحظة: | English |
| أرقام أخرى: | LT1 oai:opus.lib.uts.edu.au:10453/37607 1197512627 |
| المصدر المساهم: | UNIV OF TECH, SYDNEY From OAIster®, provided by the OCLC Cooperative. |
| رقم الأكسشن: | edsoai.on1197512627 |
| قاعدة البيانات: | OAIster |
| الوصف غير متاح. |