دورية أكاديمية
Spinal muscular atrophy care in the COVID-19 pandemic era
| العنوان: | Spinal muscular atrophy care in the COVID-19 pandemic era |
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| المؤلفون: | Veerapandiyan, A., Connolly, A. M., Finkel, R. S., Arya, K., Mathews, K. D., Smith, E. C., Castro, D., Butterfield, R. J., Parsons, J. A., Servais, Laurent, Kuntz, N., Rao, V. K., Brandsema, J. F., Mercuri, E., Centro Clinico Nemo, Policlinico Gemelli, Ciafaloni, E. |
| المصدر: | Muscle and Nerve, 62 (1), 46/49 (2020-07) |
| بيانات النشر: | NLM (Medline), 2020. |
| سنة النشر: | 2020 |
| مصطلحات موضوعية: | Human health sciences, Neurology, Pediatrics, Sciences de la santé humaine, Neurologie, Pédiatrie |
| الوصف: | The Corona Virus Disease 2019 (COVID-19) pandemic has resulted in reorganization of healthcare settings affecting the delivery of clinical care to patients with spinal muscular atrophy (SMA). There is a concern that patients with SMA may be at increased risk of manifesting severe symptoms of COVID-19. Currently approved therapies for SMA improve survival and motor function, however, their delivery requires an increased exposure to the health system and a dedicated healthcare team. In this paper, we discuss consensus recommendations pertaining to care of SMA patients during the pandemic. We highlight that SMA treatments should not be perceived as elective. Decisions regarding the delay of treatments should be made with consideration of the potential risks of COVID-19 exposure and the risk of that delay. We emphasize the importance of collaborative treatment decisions between the patient, family, and health care provider, considering any geographic or institution-specific policies and precautions for COVID-19. This article is protected by copyright. All rights reserved. This article is protected by copyright. All rights reserved. |
| نوع الوثيقة: | journal article http://purl.org/coar/resource_type/c_6501 article peer reviewed |
| اللغة: | English |
| Relation: | urn:issn:0148-639X; urn:issn:1097-4598 |
| DOI: | 10.1002/mus.26903 |
| URL الوصول: | https://orbi.uliege.be/handle/2268/256229 |
| حقوق: | open access http://purl.org/coar/access_right/c_abf2 info:eu-repo/semantics/openAccess |
| رقم الأكسشن: | edsorb.256229 |
| قاعدة البيانات: | ORBi |
| DOI: | 10.1002/mus.26903 |
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