دورية أكاديمية
A rare partnership: patient community and industry collaboration to shape the impact of real-world evidence on the rare disease ecosystem
العنوان: | A rare partnership: patient community and industry collaboration to shape the impact of real-world evidence on the rare disease ecosystem |
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المؤلفون: | Klein, T. L.Aff1, Aff2, IDs13023024032622_cor1, Bender, J., Bolton, S., Collin-Histed, T.Aff5, Aff6, Daher, A., De Baere, L., Dong, D., Hopkin, J., Johnson, J.Aff8, Aff10, Lai, T., Pavlou, M., Schaller, T.Aff12, Aff13, Žnidar, I. |
المصدر: | Orphanet Journal of Rare Diseases. 19(1) |
قاعدة البيانات: | Springer Nature Journals |
تدمد: | 17501172 |
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DOI: | 10.1186/s13023-024-03262-2 |