دورية أكاديمية

Measuring health related quality of life (HRQoL) in Lysosomal Storage Disorders (LSDs): a rapid scoping review of available tools and domains

التفاصيل البيبلوغرافية
العنوان: Measuring health related quality of life (HRQoL) in Lysosomal Storage Disorders (LSDs): a rapid scoping review of available tools and domains
المؤلفون: McDool, Emily, Powell, Philip, Carlton, JillAff1, IDs13023024032560_cor3
المصدر: Orphanet Journal of Rare Diseases. 19(1)
قاعدة البيانات: Springer Nature Journals
الوصف
تدمد:17501172
DOI:10.1186/s13023-024-03256-0