دورية أكاديمية
Measuring health related quality of life (HRQoL) in Lysosomal Storage Disorders (LSDs): a rapid scoping review of available tools and domains
العنوان: | Measuring health related quality of life (HRQoL) in Lysosomal Storage Disorders (LSDs): a rapid scoping review of available tools and domains |
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المؤلفون: | McDool, Emily, Powell, Philip, Carlton, JillAff1, IDs13023024032560_cor3 |
المصدر: | Orphanet Journal of Rare Diseases. 19(1) |
قاعدة البيانات: | Springer Nature Journals |
تدمد: | 17501172 |
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DOI: | 10.1186/s13023-024-03256-0 |