دورية أكاديمية

Caregiving and Friendship: Perspectives from Care Partners of People with Aphasia

التفاصيل البيبلوغرافية
العنوان: Caregiving and Friendship: Perspectives from Care Partners of People with Aphasia
اللغة: English
المؤلفون: Madden, Elizabeth B., Therrien, Michelle, Bislick, Lauren, Wallace, Sarah E., Goff-Albritton, Rachel, Vilfort-Garces, Ana, Constantino, Christopher, Graven, Lucinda
المصدر: Topics in Language Disorders. Jan-Mar 2023 43(1):57-75.
الإتاحة: Lippincott Williams & Wilkins. Available from: Wolters Kluwer. 351 West Camden Street, Baltimore, MD 21201. Tel: 800-638-3030; e-mail: MR-WKCustomerSupport@wolterskluwer.com; Web site: https://journals.lww.com/pages/default.aspx
Peer Reviewed: Y
Page Count: 19
تاريخ النشر: 2023
نوع الوثيقة: Journal Articles
Reports - Research
Descriptors: Caring, Friendship, Aphasia, Caregivers, Interpersonal Relationship, Chronic Illness
DOI: 10.1097/TLD.0000000000000301
تدمد: 0271-8294
1550-3259
مستخلص: Friendship is an essential component of quality of life. The ongoing lifestyle changes and strain typically experienced by care partners of people with aphasia (PWA) can impact their social network, with friendships being particularly vulnerable to change. This study aimed to understand the impact of caregiving on care partners' friendships over time from the perspective of care partners of PWA. An online survey addressing care partners' demographics, care recipients' demographics, and care partners' perceptions of their friendships over time (before caregiving and during the acute and chronic stages of caregiving) was codesigned with three care partner stakeholders and then distributed to other individuals who care for a person with aphasia. Survey responses from 35 care partners of PWA who completed the survey were analyzed using quantitative and qualitative methods. Most participants reported their friendships were different in both the acute and chronic stages of caregiving compared with before caregiving. Overall, perceived friendship satisfaction and support decreased over time. Qualitative analysis revealed five main factors that could either facilitate or hinder care partner friendships, including role changes, personal characteristics, friendship initiation, friendship interactions, and outside influences. This work highlights that caring for a loved one with aphasia negatively impacts friendships for many care partners, and these friendship changes are often long-lasting. More resources for managing the impact of aphasia on care partners' social lives are needed, which, in turn, might improve the friendships and well-being of both the care partner and their loved one with aphasia.
Abstractor: As Provided
Entry Date: 2023
رقم الأكسشن: EJ1383038
قاعدة البيانات: ERIC
الوصف
تدمد:0271-8294
1550-3259
DOI:10.1097/TLD.0000000000000301