دورية أكاديمية
Being a Child with Intellectual Disabilities in Hospital: The Need for an Individualised Approach to Care
العنوان: | Being a Child with Intellectual Disabilities in Hospital: The Need for an Individualised Approach to Care |
---|---|
اللغة: | English |
المؤلفون: | Oulton, Kate (ORCID |
المصدر: | Journal of Applied Research in Intellectual Disabilities. 2024 37(1). |
الإتاحة: | Wiley. Available from: John Wiley & Sons, Inc. 111 River Street, Hoboken, NJ 07030. Tel: 800-835-6770; e-mail: cs-journals@wiley.com; Web site: https://www.wiley.com/en-us |
Peer Reviewed: | Y |
Page Count: | 13 |
تاريخ النشر: | 2024 |
نوع الوثيقة: | Journal Articles Reports - Research |
Descriptors: | Children, Intellectual Disability, Hospitalized Children, Hospitals, Parent Attitudes, Barriers, Environmental Influences, Coping, Needs |
DOI: | 10.1111/jar.13153 |
تدمد: | 1360-2322 1468-3148 |
مستخلص: | Background: There is limited qualitative research focussed specifically on what it is like for children and young people with intellectual disabilities coming into hospital, with much of the evidence-base being about those with Autism Spectrum Condition or adults with intellectual disabilities. Aim: To share rich detail of the emotional and physical impact on children and young people with intellectual disabilities of attending hospital, from their own and their parent's perspective. Methods: Talking Mats interviews, sticker survey and photography with children and young people with intellectual disabilities, and in-depth interviews, hospital diaries and photography with their parents. Results and Conclusions: The multiple and compounding layers of complexity surrounding hospital care of children and young people with intellectual disabilities resulted in challenges associated with loss of familiarity and routine, undergoing procedures, managing sensory overload, managing pain and having a lack of safety awareness. An individualised approach to their care is needed. |
Abstractor: | As Provided |
Entry Date: | 2023 |
رقم الأكسشن: | EJ1404312 |
قاعدة البيانات: | ERIC |
تدمد: | 1360-2322 1468-3148 |
---|---|
DOI: | 10.1111/jar.13153 |